Forums > Suffering & LossPage 1 2by: Saranwrap

trisomy 18 diagnosis

posted 13th Sep
Does anyone know ANYONE who had a fetus diagnosed with trisomy 18?

We recently have and with the extent of the birth defects we have chosen to induce labor, as we have less than 90+% chance of the baby surviving without the help of me, his mother. We are inducing me starting tomorrow, and the next day I will be admitted to the hospital to deliver our boy so we can hold and say goodbye to him.

Anyone out there that can relate to this? It would help to know if there was someone who can understand how we feel..
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I live in Minnesota
posted 13th Sep
I do not but I am so sorry. So his chances of NOT surviving after birth are 90+?
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I have 2 kids & live in Stevenston, United Kingdom
posted 13th Sep
Quoting -Kaya-*La Ramera*:“ I do not but I am so sorry. So his chances of NOT surviving after birth are 90+?”




 
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I have 1 child & 1 angel baby & live in Norfolk, Virginia
posted 13th Sep
most babies with edwards syndrom dont live for more than a few days....there was one little boy though that lived for 99 and his parents celibrated his birthday everyday...it was such a cute story.
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I have 1 child & 1 angel baby & live in Indiana
posted 13th Sep
http://members.baby-gaga.com/member420710

the doctors told becky that her daughter had it and i dont remember ALL of the details but i know she was born without it and is healthy!
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I have 1 child & live in Wisconsin
posted 13th Sep
Quoting -Kaya-*La Ramera*:“ I do not but I am so sorry. So his chances of NOT surviving after birth are 90+?”
Found this on Wikipedia:


bout 95% die in utero. Of liveborn infants, only 50% live to 2 months, and only 5–10% will survive their first year of life.
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I'm due February 3rd (a girl), have 1 child & 1 angel baby & live in Bradenton, Florida
posted 13th Sep
Quoting Monster's Mama[2|17]:“ http://members.baby-gaga.com/member420710 the doctors told becky that her daughter had it and i dont remember ALL of the details but i know she was born without it and is healthy!”

that is fucked up isn't it?   Glad she is fine now! x
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I have 2 kids & live in Stevenston, United Kingdom
posted 13th Sep
Quoting C.A.R.E's entertainer:“ most babies with edwards syndrom dont live for more than a few days....there was one little boy though that lived for 99 and his parents celibrated his birthday everyday...it was such a cute story.”


i saw that its so sad-

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I have 1 child & live in Perth, Australia
posted 13th Sep
Quoting -Kaya-*La Ramera*:“ that is fucked up isn't it?   Glad she is fine now! x”



yeah we were due the same day and after she got the test for it i refused all tests like that. i couldnt take it if it was a lie and i wouldnt care if my son would have had something.. its not like id love him any less, ya know?
lol..
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I have 1 child & live in Wisconsin
posted 13th Sep



i saw this.... its so sad.  
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I have 1 child & live in Wisconsin
posted 13th Sep
http://members.baby-gaga.com/member502632
She had a little baby boy with Trisomy 18. I hope that helps some.
I'm so sorry for what you are going through.
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I'm TTC since July '09, have 1 child & live in Jacksonville, Florida
posted 13th Sep
Quoting Monster's Mama[2|17]:“ yeah we were due the same day and after she got the test for it i refused all tests like that. i ... [snip!] ... it if it was a lie and i wouldnt care if my son would have had something.. its not like id love him any less, ya know? lol..”

I totally get what you are saying I don't have any tests at all for anything like taht, not even downs. I wouldn't care x
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I have 2 kids & live in Stevenston, United Kingdom
posted 13th Sep
My sister was diagnosed. She has an account, let me see if I can get her to log on. I know quite a bit about the situation since I was by her side as she's my best friend as well. Our little Aiden was born at 37wks still born. We believe he died in utero that morning. She found out the diagnosis early on, around 17 wks I think. She chose to carry him as long as she could so she could give him the best life possible why he still had one.
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I have 1 child & 1 angel baby & live in New Jersey
posted 13th Sep

”yeah   i cried
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I have 1 child & 1 angel baby & live in Indiana
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