re: Early Intervention Chat thread

Quoting *Peitra*:“ See Liam was said to have a ASD, austism spectrium disorder Aspergers syndrom. But, we are waiting until he getsa little older before we jump to too many conclusions.”

Does he get services for ASD?

and I thought for Asburgers they had to have NO speech delay.. I mean really at this age, they don't know 100% there is no deffinate, like dna or blood or whatever else. For me the dx hurt my ego more than anything, but it does not change anything ya know?> I mean it gets us more services so I'm all about it

Once Liam got into the school system I began to see another side of him. He loves school and loves to learn. Physically he has always be on target or advance, his speech is the only thing that is stopping him from progressing to the level he needs to be for his age. Potty training his going very slow because of this.

Quoting jamils_mommy:“ Does he get services for ASD? and I thought for Asburgers they had to have NO speech delay.. I mean ... [snip!] ... my ego more than anything, but it does not change anything ya know?> I mean it gets us more services so I'm all about it”

No our developmental pedi said signs of Aspergers is high emotions, speech delays, maybe some anxiety attacks(liam has had a few), and mild OCD( liam has this also). That is why he thinks it might be Aspergers.

Quoting 5 Weeks Till Ava is Here!:“ Really? I didnt think that would be a serious issue. So what do I do, just talk to the pediatrcian??? ... [snip!] ... do they do if that is a problem, cause I've looked it up once they mentioned it and 90% of the things they mention are my son!”

Do you have a service Coordinator? I would talk to her and see about an evulation, The thing is that when they have sensory issues, they are so uncomfortable in there own skin, they can't focus long enough to learn things.. That's the best way I can think of to describe it, Think about when you go to the beach, and you get sand in your underware, feet hair mouth etc... Now imagine sitting in that sand at school, or on your computer and trying to learn, You can't it's so distracting you can't think of anything else until you get rid of the sand, well kids with SPD feel like that ALL THE TIME, so it's damn near impossible to concentrate until the sensory Issues are adressed, and weather they are under-responsive or over responsive it affects different things> Jamil has MAJOR oral aversions, and was always had his mouth closed from like 12m-19 months, he never explored toys with his mouth, he didnt play in his mouth with his hands/toung so he never learned how his mouth worked and how to make the sounds, we had to start brushing the inside of his mouth with a swab to get him to explore and then he fianlly started articulating words right.. He has now figured out how to talk out of the side of his mouth with his mouth mostly closed, but were working on it

Hello! I'm heather and my daughter Victoria is 2. She is at a 17 month old speech level and has also been diagnosed with Sensory Processing Disorder. She starts her 1st sessions next week so we will see how it goes!

Quoting *Peitra*:“ No our developmental pedi said signs of Aspergers is high emotions, speech delays, maybe some anxiety ... [snip!] ... maybe some anxiety attacks(liam has had a few), and mild OCD( liam has this also). That is why he thinks it might be Aspergers.”

Oh as long as he is getting the services it wont hurt to wait it out, But I know for sure Asburgers requires NO speech delay...

Quoting Heather~V's Mama:“ Hello! I'm heather and my daughter Victoria is 2. She is at a 17 month old speech level and has also ... [snip!] ... and has also been diagnosed with Sensory Processing Disorder. She starts her 1st sessions next week so we will see how it goes!”

I'm glad you joined us, and I love love the new avi, I was just going to link this in PWT, but you beat me here.. I think its' good we can chat about this stuff here and not fill up PWT or worry if it's boring or whatever else ya know?
I'm super excited for them to start her services..

also for the kiddos already getting or already have therapy...where you really nervous for the sessions? We have had 2 evals so far and both times v freaked out whenever they tried to even talk to her! She usually loves people...so I am worried about things getting accomplished

Quoting jamils_mommy:“ I'm glad you joined us, and I love love the new avi, I was just going to link this in PWT, but you beat ... [snip!] ... here and not fill up PWT or worry if it's boring or whatever else ya know? I'm super excited for them to start her services..”

lol

not that it would matter..no one has really been chatting much anyways!

i'm excited but nervous and worried also. sucks!

I'm happy that Jamil is doing so much better on his speech! i mean, its a good thing, but kind of sucks he doesnt qualify for free services anymore! is he still getting therapy for SPD?

Quoting jamils_mommy:“ Quoting "My son is 16 months old and is in his third week of speech therapy, we chose to pay for private ... [snip!] ... language really took off. I looked into private pay to be able to get my son a second hour a week and it was 100 per session!”

Yep, it is expensive. Ours is 165 per hour for the therapist to come here and that is once a week. I worked for Nevada Early Intervention for years and quit to stay home after my son was born so this therapist is one I worked with and I lover her and feel like her model of family education really suits us best and working with Micah in his natural environment is what I feel will benefit him best right now. One of my old coworkers is an OT so he helps out with some sensory diet activities to cut some cost for us. I wish the standard of delay wasnt so huge before qualifying for services and like I said he is not 50% yet but as he gets older the delay will become more noticable and Early Intervention is key so I didnt want to wait any longer.

Quoting Heather~V's Mama:“ also for the kiddos already getting or already have therapy...where you really nervous for the sessions? ... [snip!] ... out whenever they tried to even talk to her! She usually loves people...so I am worried about things getting accomplished”

It took a while for Jamil to warm up to the tutors/teacher/therapists.. The first I'd say Month of speech was just him getting to know her, and playing with her, He took to the Music teacher better... and by the time we started OT, he jumped right in, and worked with her.. So I was happy.. Now he is shy with new people, but once he sees they have stuff for him to work he has no problem and works with them

It helps that they bring a LOT Of stuff with them, toys, lots of toys, and there fun, they do this all day they work with difficult kids all the time, and they know how to build a relationship with a child,
I found it hard to let go and let them do it and not step in though

Quoting Heather~V's Mama:“ lol not that it would matter..no one has really been chatting much anyways! i'm excited but nervous ... [snip!] ... i mean, its a good thing, but kind of sucks he doesnt qualify for free services anymore! is he still getting therapy for SPD?”

Oh he still gets Speech, OT, just Music got cut, actualy his tutor still comes..

Quoting mommytoelyse:“ Yep, it is expensive. Ours is 165 per hour for the therapist to come here and that is once a week. I ... [snip!] ... yet but as he gets older the delay will become more noticable and Early Intervention is key so I didnt want to wait any longer.”

Yeah, it's hard because you hope he'll catch up fast, but at the same time you need the delay for them to pay, At least you know about it, and are doing everything you can.. 165 thought Ouch, it will all be worth it when he catches up though.., and I'm glad you have a friend to help with the OT/Sensory, that is more expensave than Speech think

Quoting jamils_mommy:“ Do you have a service Coordinator? I would talk to her and see about an evulation, The thing is that ... [snip!] ... right.. He has now figured out how to talk out of the side of his mouth with his mouth mostly closed, but were working on it”

Micah had severe reflux and on a vent 2 times in his first year, he had major oral aversions and I believe the trauma at birth contributed to this, we started around a few months old with brushing, he had a very severe startle reflex as well and seemed to need alot of proprioceptive input. I felt bad because I would walk with him and I was very careful to tuck his arms and legs so he wouldnt startle as much but when I would get distracted a slight movement by me could send him into hysterics   To ride in the car we used a weighted teddy bear on his stomach to help with his sensory needs. It was a rough first year for us lol

Quoting jamils_mommy:“ Oh he still gets Speech, OT, just Music got cut, actualy his tutor still comes..”

oh maybe i am just tired

i thought you said you have to pay now and he doesnt qualify bc he is less than 50% behind...did i read that right or not?