re: A 'new' Autism support thread

Hi I don't know if I am welcome here. My family does not have autism but I have asperger's. I love to share knowledge and support and sometimes I could use support from those who understand autism themselves.

Quoting Amy ♥ Ashton:“ Hi I don't know if I am welcome here. My family does not have autism but I have asperger's. I love to ... [snip!] ... I love to share knowledge and support and sometimes I could use support from those who understand autism themselves.”

Hey, Amy, of course you are! ***hugz****

Quoting Amy ♥ Ashton:“ Hi I don't know if I am welcome here. My family does not have autism but I have asperger's. I love to ... [snip!] ... I love to share knowledge and support and sometimes I could use support from those who understand autism themselves.”

Welcome!

Quoting Amy ♥ Ashton:“ Hi I don't know if I am welcome here. My family does not have autism but I have asperger's. I love to ... [snip!] ... I love to share knowledge and support and sometimes I could use support from those who understand autism themselves.”

hi!! Welcome!!! Of course your welcome, and I'm sure you have a lot to offer us as well!!!

Thanks everyone

I'm going to vent.. I'm absoluty so stressed out I want to cry.. I know Jamil has made so much progress in such a short period of time, but were at the point that everything is a struggle.. Thursday is our last Ot session and I can't afford more.. I
feel like he needs it now more than ever

he does not want to leave the house ( except to go to speech or Ot) every other time is a struggle, i literally have to fight with everything i have to get him in or out of the car... He won't respond to any questions or choices (a skill he once had) he is presevrrating on Every request he makes he just jumps up and down and says " I want _______ please" but he isn't talking to me perse it's more on an announcmet... He can do yes no dicrimination but can't tell me yes or no If he wants something... He is tryig and Doing it maybe once out of 10 times... He can do it if I nod to prompt but... He is now just yelling what hebwantsnor sees it takes at least 10 minutes for each exchange..

He will not go into my inlaws house, we used to go 2x a week.. Now he just screams i want to go home the whole time

he used to love gymnastics but now he yells I don't want to jumbo when we pull up, were going to try music or art instead...



I'm not sure if all this is happening because our schedule got messed up around 3 weeks ago when the onset of this happened and orlf course this week and last week we had cancellations in our therapy..

My husband I are fighting and he makes me so mad everyday he makes some typenof comment on what Jamil isn't doing and it pisses me off to no end...

Tonight Jamil got so over stimulated he was throwig himself at me and hitting laughing throwing himself back laughing histeracly and i got hurt but dh was not at all concerned with me and is pushing all my buttons i just want to cry

on top of this we have new goals meeting on Wednesday but I don't feel confident in the treatment were getting or anybothrrs offered

Quoting jamils_mommy:“ I'm going to vent.. I'm absoluty so stressed out I want to cry.. I know Jamil has made so much progress ... [snip!] ... of this we have new goals meeting on Wednesday but I don't feel confident in the treatment were getting or anybothrrs offered”

Hope everything is going to get better, I hope maybe at the new goals meeting you guys can come up with some new strageties.

I too am getting frustrated with Jacob. It seems like he's getting so much better, just by doing the things we've been trying to do, but I feel like Jacob is getting more violent if he doesn't get his way. He will hit me if I try to turn off the tv, he won't get dressed, I can't get him to brush his teeth, eating, I can't even get him out of the house to go shopping. My dh doesn't seem to be helping much either and Jacob's been getting over anxious to loud voices and seems to think everyone is yelling at me.

I'm not going to say much more, because it's your vent, but one thing I'm thinking for us is a change in the weather. It isn't as warm, we are having to introduce new things here such as socks and shoes, and coats and he HAS to wear them, which frustrates him, and constantly he'll walk outside in the rain in socks and have a break down because they got wet. Today he got mad because he left his hat and gloves on the bus, he's just not used to wearing them. I don't know what the weather is like where your at, but maybe???? Plus he could sense the stress if there is more than usual. I know Jacob picks up on it and we'll have 2 or 3 bad days in row all because of my one bad day.

hope things get better for you momma, not sure if I was much help.

Quoting 9 weeks left:“ Hope everything is going to get better, I hope maybe at the new goals meeting you guys can come up ... [snip!] ... have 2 or 3 bad days in row all because of my one bad day. hope things get better for you momma, not sure if I was much help.”

the weather hasn't really changed here yet, and I doubt he'll wear a jacket, he will probably just wear a sweat shirt...

I know what you mean about the transitions, tv is bad one here, there are only certian times I will even turn it on. If I turn it on at night he can't sleep and is off te whole next day If he watches to long in te morning and the whole day is off I put it on after nap and he was totally overstimulated after dinner.. He had a great day, but we didn't leave the house I'm wondering if it was the tv that did it...

Quoting jamils_mommy:“ the weather hasn't really changed here yet, and I doubt he'll wear a jacket, he will probably just ... [snip!] ... overstimulated after dinner.. He had a great day, but we didn't leave the house I'm wondering if it was the tv that did it...”

could be, I know there's some days Jacob just watches to much tv and gets over stimulated. Like that one day we watched like 4 movies in a row. I couldn't get him to do anything and he frustrated all evening.

First off, Amy, OF COURSE you're welcome! I was secretly hoping you would join, but didn't want to say anything.  

I'm sorry that Jamil and Jacob seem to be having some hard days lately. Wesley's there too, but I know his problem. He was out of school/therapy all last week due to a wicked ear infection so his schedule is alllllll off. It's slowly getting back into place. Yesterday, he did well all day until about 4. He had refused a nap earlier, so he got tired early on and went into sensory overload. Screaming, throwing himself everywhere, knocking down things...picking them up...and knocking them down again...with his whole body. I'm hoping he'll get a nap in today!

I hope that Jamil starts improving soon. Hopefully it was his routine and it will get better gradually.   I'm sorry you got hurt and hubby is being inconsiterate. I know Jesse has those days where he seems to compare every child to Wesley. Most of the time, it's because he's hurt because Wesley's not 'normal', although he loves Wesley no matter what.

And hopefully it's the weather change that's throwing Jacob off! Heck, the weather change is throwing ME off! lol.

Now to share something a few things that Wesley has amazed me with this week:
He has, on more than one occasion, helped me pick up items that he had knocked down. He even did it until we were finished which is a big improvement!
He has come to LOVE his Mr. Potato Head and can put all of the pieces in the right spots by himself!!!
He shared his crackers with his little brother when I asked him to. He also went up to Ian the other day, grabbed his hands, and proceeded to show him patty cake!  

Quoting ~*Tasha*~ {SCM} {ASP}:“ First off, Amy, OF COURSE you're welcome! I was secretly hoping you would join, but didn't want to say ... [snip!] ... brother when I asked him to. He also went up to Ian the other day, grabbed his hands, and proceeded to show him patty cake!  ”

aww yay Westley!! That's awesome!!
Sorry he had a rough day!!

I think Jamil has a cold or is maybe getting one but I'm not sure... He was go

cranky this mornig had a good but lazy OT session, then he he was not happy i had company, BUT he understands greetings it has been a goal for him togreet people and he's doing it but it's ass backwards he says bye when people come (but he'd rather them leave) and he says hi to daddy when he has to leave for work but he doesn't want him too'. Little brat.

Now I'm annoyed inhad written 25 goals I wanted this quarter i feel since there is such rapid brain growth up to age 3 our goals should reflect that, i
they wrote 3!! 3 goals seriously i had ONE main goal which he had emergig skills fir and she dropped it and said he was mastered!! Hello it's his biggest deficit WTF?? And there is nothig about language or conversation skills?? WTF? Sonthe meeting is tomorrow I told her today what I wasn't happy with and she says oh inalreadybsubmuttednit insaid I'm not happy with it I can decline to sign if i don't agree right?? She was saying oh we can work on that even if it's notna goal but she's not unless i prompt her too bleh

I would have joined sooner if I had realized. Thanks for your warm welcomes every day. I hope groups like this really help to change everyone's perspective of autism and what it is. So many people say that they would never know I had autism if I never told them. I don't try to hide the fact that I do have autism, but I also don't let it define my life. At times I still struggle with focusing and staying on task myself, but I still do live a good life even with this condition.

Quoting jamils_mommy:“ aww yay Westley!! That's awesome!! Sorry he had a rough day!! I think Jamil has a cold or is maybe ... [snip!] ... i don't agree right?? She was saying oh we can work on that even if it's notna goal but she's not unless i prompt her too bleh”

Grr..I hope it gets straightened out. >.<

Quoting Amy ♥ Ashton:“ I would have joined sooner if I had realized. Thanks for your warm welcomes every day. I hope groups ... [snip!] ... At times I still struggle with focusing and staying on task myself, but I still do live a good life even with this condition.”

We all hope the group helps others and it's so great to have support from others who know what it's like.   Thank you again. I just want you to know that you give me hope for Wesley when it gets frustrating.  

Quoting ~*Tasha*~ {SCM} {ASP}:“ We all hope the group helps others and it's so great to have support from others who know what it's like. ... [snip!] ... what it's like.   Thank you again. I just want you to know that you give me hope for Wesley when it gets frustrating.  ”

That is awesome. I have no clue how much I frustrated my parents. I was before AS was even diagnosable. Yet with love autistic children grow up to live great lives.