thinning of brain white matter?

My daughter has had some developmental delays, mostly with her motor skills. We had an MRI done and my doctor called me back and said she has thinning of white matter on her brain. Anyone know anything about this? I have been looking it up on the internet and the only thing I have found that it may be is Periventricular Leukomalacia or PVL. I'm just looking for other moms who have dealt with this and I am curious to know what to expect. This has all happened so fast and I am so worried, I guess I just need someone to talk to about it.

my son has PVL. has she been diagnosed with anything or is this a new development?.. to my knowlege it hasn't realy been a problem. my son has cerebral palsy but he was born with part of his brain missing.

Quoting Connor's mom♥[GDS]:“ my son has PVL. has she been diagnosed with anything or is this a new development?.. to my knowlege it ... [snip!] ... to my knowlege it hasn't realy been a problem. my son has cerebral palsy but he was born with part of his brain missing.”

No diagnosis yet. I just got those MRI results on friday. I am just curious about it and my doctor didn't really explain it to me all that well or tell me what to expect. She doesn't have another appointment with her specialist until september. All I was told is to get her going on physical therapy and that they didn't know what will happen in the future, whether she will have other delays or not.

is PVL all they said was going on with her brain? if you don't mind why did she need an MRI was she early? if you don't want to answer i will understand, or if you want you can PM me to keep it private.

Quoting Connor's mom♥[GDS]:“ is PVL all they said was going on with her brain? if you don't mind why did she need an MRI was she early? ... [snip!] ... she need an MRI was she early? if you don't want to answer i will understand, or if you want you can PM me to keep it private.”

She wasn't early. She was born at 39 weeks. She was taken c-section because my blood pressure was elevated and I had high blood pressure with my son also. Anyway, she was perfectly healthy at birth, but at her 6 month appointment I mentioned to my doctor that she wasn't trying to sit up or roll completely over. He decided to send her to Riley's childrens hospital in Indianapolis, IN to a developmental specialist. They thought she did a few other odd things, she holds her hands in a fist a lot, happy disposition, and she is kinda floppy. They ran a bunch of blood tests and they all came back negative and last wednesday she went in for an MRI and they called me friday with the results. All they said was that she has moderate thinning of the white matter on her brain. No diagnosis. I just looked up thinning white matter and came up with the PVL myself. I am not sure if they are waiting on her urine test to come back before they decide to diagnose her or what. That is the only test result we are waiting on. She is a very happy baby and she smiles a lot, she just doesn't seem to be able to do a whole lot of things like sitting up, rolling over, she won't put weight on her legs if you try to stand her up. She plays with her toys, but she just recently started grabbing things and actually holding on to them for longer than a few seconds. She started out really good and caught on to breastfeeding great, even better than her older brother who is perfectly normal. She smiled earlier than her brother also. I had no clue that there was anything wrong with her until she just didn't seem to be doing things I thought she should at 6 months. I guess I'm just looking for peace of mind, I'm scared and don't know what to expect.

Oh she is 7 months now by the way.

my son has cerebral palsy and holds on of his hands in a tight fist alot and is developmentally delyed, but as i said he is missing part of his brain. good luck and physical therapy is awesome.

Quoting Connor's mom♥[GDS]:“ my son has cerebral palsy and holds on of his hands in a tight fist alot and is developmentally delyed, but as i said he is missing part of his brain. good luck and physical therapy is awesome.”

Thanks. If you don't mind I would like to add you to my parentank.

most definetly. feel free to talk to me anytime. im in ahwaii so its only 8am right now. im normally up when most mainlanders are sleeping

Quoting Connor's mom♥[GDS]:“ most definetly. feel free to talk to me anytime. im in ahwaii so its only 8am right now. im normally up when most mainlanders are sleeping”

Thanks. I will do that.  

I was googling and came across your post. My son also was diagnosed with an MRI as having thinning white matter. He was approx 18 months at the time and is now 4 years old. We weren't told much about it. I kept bringing it up at the specialist appointments and was basically told not to worry about it. But, his medical report says PVL as a diagnosis. We got back in October and I once again will be asking questions. From what I was told...the thinning white matter affects motor planning and basically the communication from his brain to his body and vise versa are impaired. So it takes longer for my son to process things. I know this probably doesn't help, but wanted to let you know someone else also has the dx. By the way, my son was also diagnosed at Riley in Indianapolis.

My son(7 months) just had an MRI and they found a thining of white matter..
He has had a feeding tube for about two months,
The neurologist said that the thinning of the white matter
Could be the cause of his lack of appetite.
He always refuses bottles and baby food. All they
Said was that time will tell, he seems to be right on track
As far as developmental milestones, minus eating...
Before the feeding tube was placed I was lucky to get him
To eat 10 ounces a day...
Now, with the help of the feeding tube, he is getting around 28 ounces
A day. I'm kind of unhappy with the information they gave me,
As I do not really understand the topic... When the white matter is thin can that
Affect all sorts of things? Can new symptoms occur with time? Can it just go away with age? does it affect every child differently??