Forums > Special NeedsPage > 13by: Listerfiend

A list of Disorders.

posted 20th May
I see a lot of the times people show up here after googling something, finding a thread here and responding.

I want to create a list of Parents on this site with Children who have disorders, or parents with Disorders themselves. So other parents in need can find support!

ANYTHING that is HIGHLIGHTED or UNDERLINED is a link, click it for more info.

Here is the link to the Mental Health Support thread;

http://forum.baby-gaga.com/about353741.html

Here is a link to a BG member who has spent a good portion of her life working with and being around Special Needs children, Sherri.

Here is the link for the Down Syndrome Parent Support Thread;

http://forum.baby-gaga.com/about569593.html

Here is a link for Parent's with children who have Autism;

http://forum.baby-gaga.com/about616925.html

Here is a link for the Genetic Disorder Support Thread; [GDS]

http://forum.baby-gaga.com/about256936.html

I want to add you to this list; [If you have a disorder or your child does!]

Down Syndrome Mothers;

Sam, who's son has DS.
Ashley, who's son has DS.
Jess, who's son has DS.
Amanda, who's daughter has DS.
Lindsay, who's son has DS.
Andrea, who's son has DS.
Suzy, who's daughter has DS.
Merissa who's daughter has DS.

Cystic Fibrosis Mothers;

Tawny, who's son has CF.
Lisa, who's son has CF.
Sara, who's daughter has CF.


Syndactyly, Brachydactyly, and Polydactyly;

Brooke, who's son has Syndactyly.
Tiffany, who's son has Syndactyly .
Amanda, who's son has polydactyly and schizencephaly.


Other Genetic Disorder Mothers;

Jenell, who's daughter has Turner Syndrome.
Sara, who's daughter has VUR Reflux.
Jelena, who's son had cardiac surgery at 11 days old.
Desiree, who's daughter has Galactosemia.
Lindsy, who's son has yet to get the proper diagnosis, yet might be given the diagnosis cerebral palsy.
Aly, who's daughter has McKusick Kaufman Syndrome.
Chasity, who's son has Autism, daughter has Chronic Asthma + Type 1 Diabetes, and who's other son has suffered from Seizures.
Bridget, who's daughter has Alpha-1 Antitrypsin Deficiency.
Jenna, who suffers from Neurofibromatosis.
Jill, who's daughter has Kidney Reflux, and Strabismus.
Ashley, who's niece suffers from; Acute Lymphoblastic Leukemia.
Katy, who's daughter has AV Canal Defect, as well as a son who suffers from ADHD.
Jamie, who's daughter has only One Kidney.
Heather, who's nephew's suffer from MCAD.
Mikayla who's daughter has Asthma.
Laurie who's son has Williams Syndrome.
Latisha who's son has Cerebral Dysgenesis.
Lacey who's daughter suffered from Bilateral cleft lip/palate.
Tasha who's son has Autism, ADHD, Asthma, and ASD.
Ashley who's daughter suffers from Seizures.
Keisha who's daughter has Congenital Adrenal Hyperplasia.
Marcie who's son suffered from Pilocytic Astrocytoma.
Tiffany, who's daughters had/have club feet.
Christina who's son has Sensory Processing Disorder.
Felecia who's son has Type 1 Diabetes.
Jennifer who's son has Congenital Hypothyroidism.
Laree who's daughter has DiGeorge Syndrome.
Kelly who's son has MCAD Deficiency.
Jasmine who's daughter has Cerebral Palsy.
Cassi who's son has Asthma.
Jacque who's son has Asthma and Sleep Apnea.
Erica who's son has Gastroesophageal Reflux Disease.
Crissy who's son has Asthma and severe milk/soy/dairy allergies.
Stacy who's son has Galactosemia.



Parents With Disorders;

Jessica, who suffers from Rheumatoid arthritis.
Jill, who suffers from Adult Onset Still's Disease.
Ashley, who suffers from Ménière's Disease.
Jill, who suffers from Crohn's Disease.
Mikayla who suffers from Kidney Disease.
Miranda who suffers from Epilepsy, Grand mal and Myoclonic seizures.
Rachel who suffers from ADD and Guillain-Barré syndrome.
Kaila who suffers from Systemic Lupus.
Erica who suffers from bleeding ulcers.
Anna who is hearing impaired.

If you are NOT ON this list please respond so I can add you.
quote
I have 2 kids & 2 angel babies & live in Kentucky
posted 20th May
i suffer from bi-polar disorder and was just diagnosed last week. does that count to the list?
quote
I'm due April 29th, have 1 child & 2 angel babies & live in Florida
posted 20th May
Averie has, Kidney Reflux. Its treatable though.
And she was born with a Strabismus.

Me, I have "Adult Onset Still's disease" There is not a cure for it.
quote
I have 2 kids & 4 angel babies & live in Iowa
posted 20th May
Quoting Mikayla McBitchy:“ i suffer from bi-polar disorder and was just diagnosed last week. does that count to the list?”

There is a mental health thread, you want the link?
quote
I have 2 kids & 2 angel babies & live in Kentucky
posted 20th May
This is an amazing idea, very good thinking!
quote
I have 1 child & live in Ontario
posted 20th May
Quoting [Aly][GDS]Listerfiend:“ There is a mental health thread, you want the link?”
sure! thanks!
quote
I'm due April 29th, have 1 child & 2 angel babies & live in Florida
posted 20th May
Don't know if this counts but I have rheumatoid arthrits. My name is Jessica.
quote
I have 1 child & live in Florida
posted 20th May
Quoting [Aly][GDS]Listerfiend:“ I see a lot of the times people show up here after googling something, finding a thread here and responding. ... [snip!] ... Deficiency. Jenna, who suffers from Neurofibromatosis. If you are NOT ON this list please respond so I can add you.”


Idk if it counts bc it's not my child, but my 3 year old niece (who is basically like my other child) has Acute Lymphnoblastic Leukemia.

And I have Menieres disease. (pretty much vertigo) However, I don't consider it serious.
quote
I have 1 child & live in Harrow, United Kingdom
posted 20th May
just wanted to add, that my best friend has a daughter with down syndrome and i think it is great of you to have a post like this!!!!!
quote
I'm due April 29th, have 1 child & 2 angel babies & live in Florida
posted 20th May
You can add me to the list. I don't have a child with any disorders. But my sister who is 18 has multiple things wrong with her. She is michalcephalic (head is smaller in porportion to her body) seizures, tumor on right side of brain. I can help out some moms dealing with the same thing. Also I worked at a camp (Louisiana Lions Camp) for the mentally challenged, physically challenged and diabetic youth of Louisiana. I worked there for 4 summers. I know my stuff and would love to help out mommmies.
quote
I have 1 child & live in Baton Rouge, Louisiana
posted 20th May
Quoting Mikayla McBitchy:“ sure! thanks!”


http://forum.baby-gaga.com/about353741.html
quote
I have 2 kids & 2 angel babies & live in Kentucky
posted 20th May
Quoting hardcorexglam:“ Idk if it counts bc it's not my child, but my 3 year old niece (who is basically like my other child) ... [snip!] ... has Acute Lymphnoblastic Leukemia. And I have Menieres disease. (pretty much vertigo) However, I don't consider it serious.”

My uncle has Menieres disease.
quote
I have 2 kids & 2 angel babies & live in Kentucky
posted 20th May
If you all can leave your name, i'll link everything up in a little bit!
quote
I have 2 kids & 2 angel babies & live in Kentucky
posted 20th May
Okay. ANme is Sherrie.
quote
I have 1 child & live in Baton Rouge, Louisiana
posted 20th May
Quoting [Aly][GDS]Listerfiend:“ My uncle has Menieres disease.”



It's a pain in the ass lol.
My Dr. said that my 'attacks' come from too much salt intake and/or too much stress.
Well I love me some salt AND it's completely impossible for me toalieviate all of the stress in my life right now lol, so I blame myself!

My name is Ashley.
quote
I have 1 child & live in Harrow, United Kingdom
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