Forums > Special NeedsPage 1 <> 38by: LalaListerfiend

re: A list of Disorders.

posted 11th Jul '12
Quoting LalaListerfiend:" I want to create a list of Parents on this site with Children who have disorders, or parents with Disorders ... [snip!] ... Jessica who has Sensory Integration Disorder, OCD and ADD. If you are NOT ON this list please respond so I can add you."

Brittany: My son will soon be born with Fibular Hememilia
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I live in Freeport,
posted 24th Jul '12
Quoting ♥KRJ + Me♥:" I haven't seen a thread for something like that, but I can only imagine how hard that would be. Does ... [snip!] ... case he gets stung? I don't know much about it, but it would be scary having to worry about anaphylactic shock all the time! "


He does carry an epi pen at all times, he is allergic to egg protein and so it is somewhat complex in that he could theoretically eat it baked in foods like cakes and meatloaf but in its raw or stove cooked form he would go into anaphylactic shock and risk death ... Its fairly manageable as long as we are careful to limit his exposure and really be vigilant in public
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I have 5 kids & live in Manitoba
posted 26th Jul '12
<blockquote><b>Quoting LalaListerfiend:</b>" I want to create a list of Parents on this site with Children who have disorders, or parents with Disorders ... [snip!] ... Jessica who has Sensory Integration Disorder, OCD and ADD. If you are NOT ON this list please respond so I can add you."</blockquote>




Could you add my daughter to the list for 1p36 deletion syndrome?
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I have 4 kids & live in Kingsport, Tennessee
posted 1st Aug '12
My daughter Haley has Sensory Processing Disorder.
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I have 1 child & live in Everett, Washington
posted 1st Aug '12
<blockquote><b>Quoting Heather[AJB]+1 DIVA:</b>" <blockquote><b>Quoting LalaListerfiend:</b>" I want to create a list of Parents on ... [snip!] ... list please respond so I can add you."</blockquote> Could you add my daughter to the list for 1p36 deletion syndrome?"</blockquote>

Your daughter is so cute!
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I have 1 child & 2 angel babies & live in Georgia
posted 1st Aug '12
<blockquote><b>Quoting BlueJenn:</b>" My daughter Haley has Sensory Processing Disorder. "</blockquote>


Hey mama! My son has SPD too. How long has she been diagnosed? I'm reading a book titled The Out of Sync Child and it is sooo good!. It gives a better understanding of it and gives tips to deal with meltdowns.
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I have 1 child & 2 angel babies & live in Georgia
posted 2nd Aug '12
Quoting Mrs Mia Wallace:" <blockquote><b>Quoting BlueJenn:</b>" My daughter Haley has Sensory Processing Disorder. ... [snip!] ... titled The Out of Sync Child and it is sooo good!. It gives a better understanding of it and gives tips to deal with meltdowns."

She was diagnosed about 2 months ago. I have that book, a very good read so far. I also have the activities book with that one. But I also have another one that i have yet to start reading, which is called the everything parents guide to sensory integration disorder.
My daughter also goes to OT and is on a waiting list for speech therapy, but she will also get that when she starts developmental preschool in the fall.
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I have 1 child & live in Everett, Washington
posted 2nd Aug '12
Quoting BlueJenn:" She was diagnosed about 2 months ago. I have that book, a very good read so far. I also have the activities ... [snip!] ... and is on a waiting list for speech therapy, but she will also get that when she starts developmental preschool in the fall. "

It is a good book. I've read it and I keep going back, making notes and referencing it, lol.
I saw the other book on activities and such but I didn't have enough money at the time to get them both.  
I'm gonna get it though! I'm glad to hear she's in OT. Judah is still on the waiting list but (fingers crossed) it won't be too much longer. I PT'd you back, btw.  
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I have 1 child & 2 angel babies & live in Georgia
posted 6th Aug '12
Im Rikki and i have a daughter with tuberous sclerosis complex. it is a genetic disorder.
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I have 1 child & live in Piedmont, Oklahoma
posted 9th Aug '12
<blockquote><b>Quoting Mrs Mia Wallace:</b>" <blockquote><b>Quoting Heather[AJB]+1 DIVA:</b>" <blockquote><b>Quoting ... [snip!] ... Could you add my daughter to the list for 1p36 deletion syndrome?"</blockquote> Your daughter is so cute!"</blockquote>



Thank you  
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I have 4 kids & live in Kingsport, Tennessee
posted 11th Aug '12
My three yr old son Zackery was diagnosed with Type 1 Diabetes at 15 months. He loves his medical ID necklace. We call it his "bling". lol There are many days where I yell out on FB "I hate you type 1 diabetes! YOU SUCK!!!" It does suck, but getting his finger poked and four shots a day is his normal routine and it's all he knows. He's cool with it, so I am too.

*Jennifer*
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I'm due October 29th (it's a surprise), have 2 kids & live in Kerrville, Texas
posted 15th Aug '12
You can add me too if you want. I was born with Schizencephaly and as a result I was diagnosed with Epilepsy in 2009. I didn't start having seizures until after I had my son so I had no idea I had Schizencephaly til then. As far as I know I've only had Grand Mal seizures, but now that I'm (finally) on meds, I've been seizure free for almost 4 months. Lets hope it stays that way. Lol.
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I have 2 kids & 1 angel baby & live in Kansas
posted 8th Sep
I'm Jessica.

I was diagnosed with Multiple Sclerosis during pregnancy this year. Can you add me?
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I have 1 child & live in Kentucky
posted 16th Sep
i also suffer from that as well as epilepsy... does that count?

Quoting That Mik Girl:" i suffer from bi-polar disorder and was just diagnosed last week. does that count to the list?"
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I live in Japan
posted 27th Oct
<blockquote><b>Quoting Connor's mom♥ TTC#:</b>" my son was officially diagnosed with cerebral palsy"</blockquote>



My son is almost 8months he has been diagnosed with cerebral palsy also if u dont mind adding me Im tryin t ok find parents with similar condition n problems as I am having a hard time excepting my sons diagnosis since it happened from birth nothing else..
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I live in USA
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