re: A list of Disorders.

Quoting [Aly][GDS]Listerfiend:“ I want to add you, can but it needs to be shorter. =P What specifically do you want it to say? Someone w/ Special Needs Children Experience? Something like that?”

That'd be fine. I know a lot about special needs children.

I know that I don't exactly qualify for the list, because I'm not the mother, but I have 2 nephews with MCAD deficiency, or
Medium-Chain Acyl-CoA Dehydrogenase Deficiency
And know my fair share about it.

If it were a more common GD that other moms could share about, I wouldn't ask to be on the list, but because it's rare I would like to be on the front page for anyone with questions about it. MCADD seems really scary, but it doesn't need to be.

ETA: I see that you were asking for names, so I can follow rules  
My name is Heather, my nephews are Chandler and Cole.

I didnt forget about this to update it.

Im on meds for all these cysts and it's making me all effing weird. Lol

The OP has been updated, please tell me if you have been missed!

My daughter has tuberous sclerosis

I am Jennifer my son has dysphagia

What are your names?

Jennifer son Patrick

My name is Zoeyie-alice my daughter nevaeh-tracey

I'll be updating it tonight, and adding you two to the list!

Hi. I posted on the GDS thread too. My name is Laurie and my son Davin has Williams Syndrome (WS); also referred to as Williams-Beuren Syndrome (a rare non-hereditary genetic syndrome). Can you please add me as well?! Thanks in advance.

my 3 yr old has HLHS...heart defect..... if he counts... Jeremiah
and my 6 month old Lawson has a breathing problem dysphagia and trocolitis i believe thats how you spell it..his neck and head is messed up and its been that way since he was born  

Hi my name is Latisha and my son Bryson has Cerebral Dysgenesis here is a link to tell more about it. I would love to be on your list to hopefully find someone else out there whose child may have the same thing so far we have only meet one other person with the same condition. http://www.ninds.nih.gov/disorders/neuronal_migration/neuronal_migration.htm

i'm Lacey, my almost 13 month old daughter [ Faylynn ] has a bilateral cleft lip/palate.
can i be added on?

Yes. I'm gonig to be updating the OP when I Can sit here fo rlonger than 10 mins w.o hurting.