Bilateral Cleft Lip/ Palate

My daughter was born 11 months ago today with a bilateral cleft lip and palate.
but other then that was very healthy.

this was the 20 wk US, you can see clearly that she had the cleft.
it was left unfounded till the day she was born.
this was the day she was born, clearly you can see the cleft lip.
she had the cleft palate, all the parts are there, they just didn't form together.
This was the day of her first surgery, the device is a Lathum.
this is to pull the gum back into place, so the lip repair will be easier.
this came out 6 days later because it wasn't placed right.
this is the NAM device, what it does is round out her nostrils, and push her gum into place. this took about 3 to 4 months for the whole process to be done.
it made her face bleed from the tape, coming on and off.
it was a very hard time for us.
this was in the recovery room, after the lip repair. as you see she has a nose, and its all put together. that day i cried more then any other day that i know of.
my little girl, was not my same little girl. the unique little princess i carried for 9 months. this was done right before she turned 6 months old.
Now, this is Faylynn right before her palate surgery, you can tell up close that she did have the cleft lip. but from a distance you think she just bumped it or something. i don't have a picture of her palate because well it's something she hates people to be near [her mouth]. this has been very nerve-racking for my family. but we are done until she starts school. she will have another palate extension surgery when she starts school, then right before her adult teeth start coming in she will have a bone graph, from her hip so her adult teeth can anchor into the bone. she'll then proceed to maybe have 2 more after, in her teen years.
we have some years of speech therapy ahead of us. but we don't mind it.
but from the outcome of all of this, is that Faylynn is a stronge willed little girl, and can make it through anything.

if your child has a cleft, please feel free to PM me, i'm here to help.
this has been an experience that i've gone through, i'd love to help other mothers going through this as well.

She's beautiful.

she is a very beautiful little girl. you are a strong mama and she takes after you!

She is beautiful! My nice has the same bilateral cleft lip/palate. She is now 4.

Quoting Mistilinn:“ She's beautiful.”

thank you   i tryed very hard to make a beautiful little girl  

She was such a brave little girl from all the surgery! She is beautiful.

I am sorry it was rough for you mama!She is absolutely gorgeous!

Faylynn is such a beautiful little girl, I know I tell you this all the time.

thank you Jenni,  
i thought i should share my story, alot of people don't know about it.
plus, i'm not ashamed to share my little girl!

Quoting Faylynn's Momma:“ My daughter was born 11 months ago today with a bilateral cleft lip and palate. but other then that was ... [snip!] ... here to help. this has been an experience that i've gone through, i'd love to help other mothers going through this as well.”

I am interested...

How can you tell from her ultrasound that she had a cleft lip/palate?

She is sooo cute btw! I like her cute nose hehehe

She is so cute. You did good moma.   

Quoting Lexus20033 *26 weeks!*:“ I am interested... How can you tell from her ultrasound that she had a cleft lip/palate? She is sooo cute btw! I like her cute nose hehehe”

if you look at the face shot, around where her nose and mouth would be its seperated in 2 places

Quoting Faylynn's Momma:“ thank you Jenni,   i thought i should share my story, alot of people don't know about it. plus, i'm not ashamed to share my little girl!”

I am glad you did, I didn't know anything about it at first.

she is very beautiful and brave.. and so are you mama!! It takes a very strong person to go through all that

Quoting Faylynn's Momma:“ if you look at the face shot, around where her nose and mouth would be its seperated in 2 places”

oohh..thank you for telling me!