Ectodermal Dysplasia

Anyone have any history with this, or children with this?

Just looking to see if there is anyone out there who has haha.

I don't even know what it is, but thought I'd bump this up since it doesn't have any responses yet!

Quoting msplainjane:“ I don't even know what it is, but thought I'd bump this up since it doesn't have any responses yet!”

Haha thanks!

Ash went to the dentist today and brought this up, she is missing some adult teeth they noticed in her xrays...they never developed. Which in itself isn't all that abnormal. But given how light-skinned she is and her vision problems he shot that out right away. So I am going to ask her ped about it! Austin too, his baby teeth never fully developed either. They are teeny tiny.

Quoting JenRoyce:“ Haha thanks! Ash went to the dentist today and brought this up, she is missing some adult teeth ... [snip!] ... away. So I am going to ask her ped about it! Austin too, his baby teeth never fully developed either. They are teeny tiny.”

I'm gonna have to google it! I hope everything is ok!

Quoting JenRoyce:“ Haha thanks! Ash went to the dentist today and brought this up, she is missing some adult teeth ... [snip!] ... away. So I am going to ask her ped about it! Austin too, his baby teeth never fully developed either. They are teeny tiny.”

you should go into pwi and check out the genetic disorder thread. there may be someone in there who knows something about it, or who has a child with it.

Quoting JenRoyce:“ Anyone have any history with this, or children with this? Just looking to see if there is anyone out there who has haha.”

My son has an ectodermal dysplasia called hay-wells syndrome. What does your daughter have? You are the first person ive seen on here who has a kid with this. Now I don't feel so alone =]