re: Febrile Seizures (occure in 1/20 children under 6!)
posted 31st Oct '11
Ok so this is such a rare case.I am the oldest of 9 children and all of them are boys all of them are epileptic. I am the only girl and the only one who is not epileptic. The only thing is I had Febrile seizures. It is so rare in anyone who is over 12 that they say they don't even treat it anymore. They are unlike anyother type of seizure where for a while I kept telling the doctors I have had Febrile seizures since I was younger and they said thats impossible that I'm too old but when all the testing pointed to the fact that yes I was having seizures and yes it was only when I had a fever. Because they wont help adults with this problem all we can do is put me on seizure watch when ever I get a fever I am now 23 and havn't had one in about 3 years but then again I have gone thru etreams to make sure I don't get sick,ever. It seems to be so rare that I doubt anyone on here is an adult that has the same problem but if there is I hope this can help you know that there is other people out there and I'm sorry I havn't been able to find help but I hope you do.quote
posted 7th Jan '12
My daughter has febrile seizures. I keep any bites clean, so that they don't get infected. And anytime I detect a fever, she is immediately given Motrin or Tylenol. They are seriously scary! quote
posted 28th Feb '12
<blockquote><b>Quoting ~*Emily*~(BBM):</b>" Bad thing was it was his father's weekend to have him. so i get a call from his father asking for his ... [snip!] ... im so glad they knew what to do. Im sorry you had to experience it. i tell people all the time make sure u keep fever's down."</blockquote>
Why was he on tubes?! My son had one a few months back and it was so scary!! At the hospital they just waited for an hour till he got back to his normal self.
I have 2 kids & live in Kansas
posted 26th Apr '12
I have a question, is it common for a 2 year old to have his first ever seizure at 2? Everywhere I have looked and read say its more common under 1. My son had his first two back in october of 2011 and his third one april 18 and his fourth one april 25. I just dont know how often a seizure can happen and be "normal" im worried because he had one and was admitted to the hospital and then a week later had another one. His seizures all last over 4 minutes.quote
posted 30th Apr '12
my son had 1 when he was 3 one of the scariest moments in my life. GOD bless all of u that have children that have these frequently.quote
posted 20th Jun '12
My son had one after getting his shots. He stopped breathing and his lips turned blue. The ambulance ride was the worst experience of my life! My son was in the hospital for two days. HORRIBLE!quote
posted 23rd Jun '12
Both my children had Febrile Convultions. My eldest had 4 from 15 months to 3 years old. My youngest had 5 from 11 months to 2 years old. He is currently 3 and so far (touch wood) he has had no more. Both my boys threw them at less than 38 degrees celcius. My eldest would get to 37.5 and have one. My doctors did numerous tests and always came up with some explanation. One time an ear infection, another time chicken pox started and even had tonsillitis. They had so many I have become a pro at handling them so when my third baby comes i hopefully can jump into action. My Husband had a few when he was young as did I so doctors told me it may be hereditary. However one thing confuses me from your post. I was told that if a fit lasts more than 4 mins it can cause brain damage and you say 10 mins? Is there a definitive answer to this? I am in Australia so maybe its all different here. But you did a wonderful explanation. Will help many parents. quote
posted 5th Nov
My son had one last year. I was at work and my mother and my brother was at the doctors because both of my kids had high fevers, my mom took both my kids to the dr and he had one in the doctors room thank goodness he was at the drs. He was in my brothers arms and I was told his eyes rolled into the back of his head and his head fell back and he started shaking and twitching, My mom called me while I was working and told me my son and her was in the ambulance on the way to the e.r I asked why and she said get a ride here and Ill tell u when u get here Im not telling u over the phone, I got a ride and went and they had my son sitting in his car seat up right and he looked fine as if nothing happened to him. Drs talked to me and etc. Had to give him a medicine prescribed to him he got better but the dr told us he could have them anytime he gets too hot. It was scary to me. He was 2 years old. He is healthy as can be and growing quite well. Im only 24 I was frightened from it all. 22 at the time.quote
posted 31st Jan
My middle daughter had one at 10 months old and even though I'm a nurse I absolutely freaked! Thank goodness her father was there... Scariest parenting moment in my 12 years of being a mom...quote
posted 16th Feb
thanks for this sticky! My son had one and I had no idea what it was... Scariest moment of my life!quote
posted 8th Mar
Our 2nd son had an episode of febrile seizures a few months after he turned 3. ( 3 separate seizures in a row)
Scared the living crap out of my husband. I don't think I've ever seen him so scared.
Thankfully I knew what they were already so although I was a bit freaked out, I was calm and knew it wasn't going to hurt him. I did get worried when the last one continued for longer than I expected and he was starting to look grey/blue from a lack of oxygen. Rushed him to the ER b/c it was the first ( and only) time it'd ever happened. They reassured us he would be fine, but at the time a lot of kids were coming in with a virus that was producing a lot of high fevers and febrile seizures so they asked us to stay for a couple day and run a bunch of tests to see if they could figure out what the virus was........ we were there for 2 nights/3 days and they never did get it narrowed down.
It was nice they admitted him though b/c he needed round the clock ibuprofen AND acetaminophen - Within MINUTES of it starting to wear off his fever would spike like crazy again and the beeper would go off. So being hooked up to that monitor really helped in preventing the spikes and any more seizures.
The pedi at our hospital told us it's not just a high fever that causes the seizures, but a really fast spike in the fever - so if your LO has a fever of 104 but it's gone up gradually they are less likely to have a febrile seizure than a low fever that suddenly jumps high.
For being my crankiest kid, he took it all really well - got to watch the tower cranes working on the building and got lots of Popsicle and visits from his grandparents, who were far more worried than we were! < my dad was upset that I wasn't going to make "someone" do a CAT scan LOL.......