My Little Lydia

Sorry ladies.. It seems like I have been finding less and less time to be on here, and more time at the hospital.. Lydia is progressing wonderfully.. She weighs a whopping 1lb 9oz.. That is a wonderful improvement for her! She had her surgery and it went well. It was the longest 7 hours of my life.. They found out she has a small bleed in her intestinal track and also we have found out that our precious little girl has Alpha-1 Antitrypsin Deficiency. It is a serious disorder and can cause severe problems.. Sometimes the dieses progresses so fast that you need a liver transplant.. The doctors told me that with a healthy diet and regular vaccines and going to the doctor frequently for checks she will lead a relatively normal life. I was divested to find this out.. But I had to remember she could have something so much worse.. If we take care of her well and she does also she should be okay.. If you want to read up more on Alpha-1 Antitrypsin Deficiency you can go here, http://rarediseasesnetwork.epi.usf.edu/clic/learnmore/alpha1.htm


Besides all of that Lydia is doing great… They are monitoring her surgery spot for infection.. They told me it will be at least 3-4 weeks before I can hold her.. That is okay.. She is worth waiting for!

I have felt like Jack and I have fallen apart since Lydia was born, he doesn’t want to comfort me or anything.. He hardly ever spends any time at the hospital and when I try to talk about Lydia he rolls his eyes.. I don’t know if this is normal or what.. I feel so alone you know? It is really hard… I don’t know what I am going to do… Part of me feels like his heart is just not in this..

Anyways Lydia’s hair is starting to lighten.. It is so beautiful.. She is so beautiful.. Even without Jack we will be okay.. Right? Anyways I am going to upload some pictures.. Thanks ladies for listening!

Love,
Bridget, and Lydia

NICU stays are hard for anyone. New fathers sometimes don't know how to act. Don't make any rash decisions while such a huge thing is happening with you and the baby!

I am sorry to hear she has that disease but I am glad surgery went well and she is gaining some weight!

Sometimes new dads don't know how to react. This is something that is really ahrd to deal with and is going to put a strain on your relationship. Hopefully he will come around.

both of you are so strong. I will keep you in my thoughts. I cannot imagine going through this. Stay Strong!!

Stay srong!!! He will come around!!! You are so strong!!! Beautiful baby!!!

She's so pretty, and she's getting big! YAY Lydia, keep growing! Sorry to hear about her disorder, I'm glad it can be treated and she can live a normal life! My daughter was born with 1 kidney, that was a shock to me!!! but she's absolutely fine, just can play tackle football lol. i think your husband is acting like a lot of men would act. i think they dont want to become too "attached" because they are scared, where as us mothers are the complete opposite, spending every second with our babies reguardless of the outcome. She sounds like shes doing AMAZING though! you must be so proud! Again.. she's adorable!

i am SO glad she is doing well! I have been over to your page to look for an update! Hopefully her Daddy will come around...sometimes it take time, maybe he is too scared to deal??

Go Lydia! Her weight gain is so great! A lot of NICU babies take a long time to gain traction and start gaining weight at the level Lydia has been. I really hope that your husband will start to take a more active role in all that is happening but, as others have said, people react differently to situations. Hopefully he will come around and be supportive. I look forward to more great Lydia updates!

She is beautiful and I am glad to see things are going well for her. NICU experience is a rough and tough road to go down and from my experience the guys deal with it differently. I was really depressed when my daughter was in the NICU and dh showed that he cared but was not depressed like I was and we sat down and had a serious talk and he told me that he was just trying to be strong and he didn't like to show his emotions. After the talk he started to show his emotions now. Its nice because the other night he was standing in her room watching her sleep and I peeked in and a tear rolled down his face. Hopefully things start going better for your relationship. Just stay strong!!!

I pray things continue going well and your family continues growing stronger. I am sure Lydia will make it through and be strong even if there is a medical condition in there. I hope things get better for you and Jack soon. All the best to you mama.