Forums > Suffering & LossPage 1 2 3 .. 7by: Haylee's Momma

This doesnt help my grieving at all!!!

posted 19th Aug
My son, Asher, died of a severe birth defect and an incorporation is trying to own the trademark to awareness of this birth defect. Please, help us to stop them from doing this.....

A organization right here in Charlottesville, VA has filed a trademark for ownership of "Congenital Diaphragmatic Hernia Awareness". This means that any other organization or individual wouldn't be allowed to use this phrase or a likeness of it without permission from one person from this organization. This birth defect that took my son, hurts 1600 babies a year in the U.S., kills 800 babies a year... and we're not allowed to raise awareness of it because we might be sued? We can't let this happen. Please help us to stop this.

http://www.ipetitions.com/petition/cdhawareness/


This is so incredibly important for families affected by CDH and for all diseases and birth defects. If this trademark is granted it will set a precedence and NO ONE SHOULD OWN AWARENESS OF A DISEASE OR DEFECT. Please help us to fight this as this would cause such damage to CHERUBS, CDH families and other CDH organizations. We won't be able to hold awareness events, fundraisers, so many services. We've been threatened by lawsuits for a year about this trademark and it wasn't even filed until April of 2008 - CHERUBS has been raising awareness since 1995. We are appealing this but a petition would greatly help.


We need your help. I am asking personally, in memory of my son,Asher and in honor and memory of all the 1000's of babies affected by and/or lost to CDH. Just a few minutes to sign this petition and forward to family and friends can make such a difference to so many people around the world.


Thank you, from my heart and on behalf of CDH families everywhere,
Kim


UPDATE:
The trademark was passed on the supplemental register (which means that it wasn't strong enough for the regular register and doesn't have nearly as many laws protecting it) so we can still fight it, but they are that much closer to winning... thank you for all your help, and if you haven't yet please go and sign the petition...it only takes a minute!

quote
I have 1 child & 3 angel babies & live in Flin Flon,
posted 19th Aug
im soo sorry for your loss!! i signed the petition
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I have 1 child & live in Phoenix, Arizona
posted 19th Aug
I signed the petition. I wish there was more that I could do to help though. I'm very sorry for your loss.
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I have 5 kids & live in Sullivan, Missouri
posted 19th Aug
Thank you so much!!
quote
I have 1 child & 3 angel babies & live in Flin Flon,
posted 19th Aug
Signed...Hope everything works out in your favor.
Sorry about your loss.
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I have 1 child & live in Kansas
posted 19th Aug
Signed...
Sorry about your loss
quote
I have 1 child & live in Marysville, Ohio
posted 19th Aug
I signed

do you want me to email this out on my email list?
quote
I have 4 kids & live in Arizona
posted 19th Aug
i am very sorry for you loss i signed and passed it on to everyone i know
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I have 1 child & live in Port Huron, Michigan
posted 19th Aug
i signed it. good luck, i hope they are stopped from doing this.
quote
I have 1 child & live in Tacoma, Washington
posted 19th Aug
Quoting Sadie 700:“ I signed do you want me to email this out on my email list?”


I will answer for Kim and say yes please. I think they need so many signatures by a certain date so the more the merrier!

thanks
quote
I'm TTC since January '08, have 1 child & 1 angel baby & live in Edmonton, Alberta
posted 19th Aug
Quoting Sadie 700:“ I signed do you want me to email this out on my email list?”

That would be wonderful   Thank you so much!!
quote
I have 1 child & 3 angel babies & live in Flin Flon,
posted 19th Aug
I signed, i'm sorry for your lose.
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I have 1 child & live in Charleston, SC
posted 19th Aug
I signed it Kim, I hope they can stop them. What crap! Who can own an awareness? Seriously!
quote
I'm due February 26th (a girl), have 2 kids & live in Naha, Japan
posted 19th Aug
Quoting gingerello:“ I will answer for Kim and say yes please. I think they need so many signatures by a certain date so the more the merrier! thanks”

Lol Ginger... you beat me to it  
quote
I have 1 child & 3 angel babies & live in Flin Flon,
posted 19th Aug
Quoting J&LsMommy:“ I signed it Kim, I hope they can stop them. What crap! Who can own an awareness? Seriously!”

I dont know..its a bunch of bull and it seriously pisses me off!! I lost my son to this I think I have the right to spread awareness!!!
quote
I have 1 child & 3 angel babies & live in Flin Flon,
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