craniosynostosis

my beautiful 7 week old boy has just been diagnosed with this, has anyone here have any experience of it??? we have to go to mainland spain for surgery and i'm scared for my baby 

Sorry I have never heard of it. I will keep him in my prayers.

Quoting jamona:“ my beautiful 7 week old boy has just been diagnosed with this, has anyone here have any experience of it??? we have to go to mainland spain for surgery and i'm scared for my baby ”

i've never heard of that, what is it? I'm so sorry , you're in my prayers

What is it?

Good luck.

one of the plates of his skull bones have fused together too early, therefore restricting the growth of his brain, which will only grow on the side of least resistance, im just so sad to have to put him through major surgery, my heart is breaking already
http://www.cappskids.org/

Quoting jamona:“ my beautiful 7 week old boy has just been diagnosed with this, has anyone here have any experience of it??? we have to go to mainland spain for surgery and i'm scared for my baby ”

My daughter's dr just ordered a cat scan done of her head to check for Craniosynostosis . They said her skull is fusing too fast   has anyone in here heard of that?

You are in my prayers. I can imagine this would be very scary. Im sorry.

yeah im really scared. I feel like i didnt do something right in my pregnancy that caused this. idk