Quoting ♥~Trevor~♥:“ I would like to see a forum about birth defects and such. I've looked around and have not been able to ... [snip!] ... on their child, could be very supportive. I would love to share my story, but I just dont know exactly where I should do it.”
My nephew was born with a similar condition but they had called it Craninsosis (or something along that line) where all his skull bones had already fused so he had no soft spots. his head looked like a football as some people would say. and when they did the surgery they also had to take the skull bones off and cut into pieces and reshape. my sister left it until he was about a year old and the surgeon i think stuffed up a little bit as now he has a dent just in the middle under his scar. he is perfectly healthy now, havent seen them in about a yr though but im pretty sure they are fine. Also my partner was actually born with half a foot on left leg and it has one little toe, nothing hereditary just something that happened within the womb, i was worried about our baby coming out with something similar but he looks fine.