Quoting ..andrea..: Can you breifly explain what that is? I am too lazy to google...lol. Plus you know first hand!
Where about in Kentucky are you?
Also, McKusick-Kaufman Syndrome.
My little one, had a mass that they found on the ultra sound. At first it was teeny tiny, they assumed that it was a cyst on her overies, and would go away before birth.
They said cysts are common in little girls, because they have to deal with their own hormones as well as mommies hormones.
Well, the ultra sound tech is obsessive about things she finds on ultra sounds, so she brought us in every week and a half to look at baby and the mass. The mass kept growing. I was 37 weeks and 4/7 days, and she measured the mass, in shock that it had gotten so big, it was as big as a baseball.
I Went to the hospital to get an amnio test done to see if her lungs were ready, if so they were going to deliver her the next morning, right?
They didn't want me to go into labor by myself since I had a previous c-section. Welllllll. My doctor was supposed to be there at 2, to take the amnio test.
At 3:30, I went into labor! [He didnt get there until 4PM]
With the amnio, that he did any way the fluid was green meaning she had used the bathroom already, so at 6:53pm she was here!
So, its a syndrome that effects things like, sight, heart, growth, and reproductive systems.
So she can see, she is growing great, and her heart is fine.
She has two extra fingers, and her second and third toes are webbed, her cervix instead of finishing, it closed up and didnt connect itself to the rest of her, so the mass they found on the ultra sound was her uterus filled up with fluid.
They drained her out, and two surgeries later she is doing fine.
They are going to start he reconstructive surgery when she is 6 months old.