Quoting charlie waffles:" My DD's issues aren't genetic but everyone was more than welcoming so post away I'm Erin and my ... [snip!] ... was born with bladder exstrophy and had seizures of unknow cause. I also have an almost 6 year old DS who is totally healthy."
How's your daughter doing now?
We're in the middle of LOTS of tests (have an EEG and an MRI coming up). She's having a few different issues. She is 17 months old. She's sleeping like 19 hours a day at least, she's not talking really at all yet. She is having trouble with the left side of her body. Like, it's weak and she's having trouble walking with that side and she can't lift heavier things with her left hand that she can with her right. The neurologist said it could be a few things including seizures, cerebral palsy, or a tumor.
But not a lot of mom I know have been through anything like this, so I'm glad to find a place where moms understand about having a kid that might have some problems. Oh, she was also a 27 week preemie which may have contributed to whatever is happening now.