Trisomy 18

I was 17 weeks pregnant when i found out I lost my baby girl. The test results just came back and they found out she had Trisomy 18. I'm hoping someone out there has gone through the same thing with a Trisomy 18 pregnancy and can answer my question. I want to try again but after my experience I am so scared to lose another baby. This is my second miscarraige and I cant imagine doing it for A 3rd time. What Im hoping to find out is if someone went through this and went on to have another pregnany. Any feedback would help.

I don't know what that is but I am very very sorry you lost your little one. I hope that you find peace. Your little girl is in heaven and you have two angels in heaven. God will give you strength if you choose to get pregnant again. I will pray for you and your family!

I'm sorry!

im sorry this happened to you.. you said in a previous post you had a mc before at 9 weeks... did they ever tell you what happened then?

Quoting meganec1214:“ I was 17 weeks pregnant when i found out I lost my baby girl. The test results just came back and they ... [snip!] ... time. What Im hoping to find out is if someone went through this and went on to have another pregnany. Any feedback would help.”

There was a family on bg that had made a video of their pregnancy and after the baby was born their baby had trisomy 18 and theirs died when it was 99 days old...ooohhhhh ummmm i think their site is something 99 or 99 something, ill try and find it and get back to you, im very sorry for your loss

heres the site.. its very sad i cried through the whole thing, not sure if you wanna watch the movie but you can e-mail em or something and ask them about it

My brother lost his baby last March to Trisomy 18. PM me and we can talk...

this is from http://www.trisomy18.org/site/PageServer?pagename=genetics
Did I Cause my Child's Trisomy?
Perhaps the biggest question parents ask is "did I do something or fail to do something that is responsible for my child having a trisomy". The answer is very distinctly "no." Although a few individuals are carriers of this condition, they are rarely aware of this prior to conception. If your chromosomal analysis comes back clear, then you must accept that what doctors know today about trisomy is this: there was nothing you could do to cause it and there was nothing you could do to prevent it. Even if you are a carrier you must not blame yourself. As parents we do everything possible to look after ourselves and give our future children the very best potential for life. The only way to prevent the conception of a trisomy child for any of us is to screen every single sperm and every single egg we ever produce prior to allowing them to unite and then monitor every cell throughout the first days of development to ensure that each and every cell division is accomplished properly. The moral? You did not cause your child's condition. You could not prevent your child's condition. All that your child now needs from you is this your unconditional and continuous love and approval even beyond the extent of their life for as long as you live.
What are the chances that this will happen to us again?
Officially the risk of any problem occuring during pregnancy for any person is 2% - 3%. Having a child with a trisomy (if that trisomy is not caused by a translocation or Robertsonian translocation) increases your potential risks by 1% - that is, 1% on top of the normal 2% - 3%. The most current statistics put the rate of trisomy 18 at 1:3,000 live births. It is estimated that the frequency among miscarried children is one-hundred-fold these numbers. There is, however, a connection between maternal age and incidence rate. To calculate your own risk factor, visit:
http://www.perinatology.com/calculators/ama.htm
Unfortunately the data shows that the more advanced the maternal age, the higher the likelihood of conceiving a child with a chromosomal abnormality. This is something which many people know already. What some of us forget from high school biology, however, is that even at 19 we can have a child with a chromosomal abnormality. Furthermore, remember that this data is limited to an extent by the fact that it represents only live-born children, and those with chromosomal abnormalities are much more likely to be miscarried or stillborn than their chromosomally "normal" counterparts. In other words, the chance of conceiving a child with a chromosomal abnormality is much greater than what is listed above.
What else do I need to know?
Its all well and good to try to understand all of the genetics behind trisomy our need for knowledge, particularly in the early stages of this journey, demands that we gain this information. As parents, though, we need to know more. Answers to questions such as, “what is this going to mean for us? For our baby? For a subsequent pregnancy?” Those answers you'll find not here, but in our community boards, with real people who have real experiences and real, very special, children. Consider joining the Online Support Community to talk with other parents.


i hope you find the answers you are looking for.

I am sorry for your loss.

I am so sorry for your loss. I have no been through this but am possibly going through it now. My baby has hydrops fetalis which can be a sign of Trisomy 18, 13 or 21. My doctor doesn't think it is downs though because of how bad it is.
Trisomy 18 is a chromosomal abnoramility. Most likely it is a one time thing but I would still ask to get some genetics testing done.That might help to put your mind at ease.

Quoting dragon_flyz232006:“ heres the site.. its very sad i cried through the whole thing, not sure if you wanna watch the movie but you can e-mail em or something and ask them about it”

http://www.ignitermedia.com/products/iv/singles/570/99-Balloons

Quoting dragon_flyz232006:“ http://www.ignitermedia.com/products/iv/singles/570/99-Balloons”

that was so sad. I am a blubbering idiot right now. That poor baby...he looked so sad near the end. It hurts my heart. I am happy though that his parents got to spend all that time with him. They will always treasure those moments.

Quoting newazmom (Jenell):“ that was so sad. I am a blubbering idiot right now. That poor baby...he looked so sad near the end. ... [snip!] ... my heart. I am happy though that his parents got to spend all that time with him. They will always treasure those moments.”

Yes it is very very sad, like i said i cry through the whole thing, so it probably wouldnt be the best movie to watch when you have just lost a baby but i was just posting the site to get more information from parents who actually went through it. i couldnt imagine the pain that this family must deal with and it breaks my heart for those who are experiencing it

Quoting Lilly and Linkin's Mommy:“ im sorry this happened to you.. you said in a previous post you had a mc before at 9 weeks... did they ever tell you what happened then?”

They just assumed it was just a "normal" miscarraige. They never did any testing on it so I will never know what the exact cause was.

trisomy 18 IS downs syndrome, Im sorry for your loss and I hope that if u do consider trying again, you will be blessed with a healthy baby.