I saw a genetic counselor and the perinatalogist today. The fluid at the back of the neck has grown and is now surrounding the entire head and goes all the way down both sides of the beans body. In just a week it has gotten much worse. The perinatalogist says that the baby has hydrops fetalis for sure. The cause is unknown right now. I have an amnio scheduled for July 7th when I will be 16 weeks.
Since the hydrops fetalis is SO severe the doctor warned me that there is a very good chance the baby will not make it to the amnio. She says they haven’t “written the baby off” but she wants me to be prepared.
This is what hydrops fetalis is defined as:
Hydrops fetalis is a severe, life-threatening problem of severe edema (swelling) in the fetus and newborn.
There are too kinds of hydrops, immune and non-immune. Immune has to do with the Rh factor so mine would be non-immune. Here are some things that can cause hydrops:
- severe anemias congenital infections (infections present at birth), heart or lung defects, chromosomal abnormalities and birth defects, liver disease
I won’t know anything more until July 7th. I am so so scared. I am also VERY angry. Why, again, is something happening? Am I not supposed to be a mom? WTF. I feel like I did something really horrible that I am getting punished for. I just can’t even believe it.
pictures of the fluid. These are of the back of the bean
3D hands in from of face
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