Forums > Special Needsby: Kaitlynn Hoefert

Mamas with Cystic Fibrosis children!

posted 28th Feb
My daughter has Cystic Fibrosis and I was looking on facebook and didnt really find a support group, so i went home and I made one and would really like it if you ladies would like it because its just a page to share stories and to ask advice/talk to other moms who are going through the same thing bc i found out(at least for me) it helps alot! I put the link to the page on it, thank you so much


https://www.facebook.com/pages/Cystic-Fibrosis-Support-Group/425815637502581
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I'm due November 12th, have 1 child & 1 angel baby & live in Nederland, Texas
posted 28th Feb
one of my friends is a big advocate in the CF community and she could help you thi is her FB you should message her
https://www.facebook.com/kacieaulait?fref=ts
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I have 1 child & live in California
posted 28th Feb
Quoting applelove:" one of my friends is a big advocate in the CF community and she could help you thi is her FB you should message her https://www.facebook.com/kacieaulait?fref=ts"

Thank you, i messaged her
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I'm due November 12th, have 1 child & 1 angel baby & live in Nederland, Texas
posted 28th Feb
Quoting Kaitlynn Hoefert:" Thank you, i messaged her"

Her daughter is about 5 I am guessing and she has CF. She had no idea that it ran in the family. She was shocked when the baby was born with it. She is doing good right now.
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I have 1 child & live in California
posted 28th Feb
Quoting applelove:" Her daughter is about 5 I am guessing and she has CF. She had no idea that it ran in the family. She was shocked when the baby was born with it. She is doing good right now."

I understand exactly how she feels bc thats how we are. It isnt in our family but she ended up being bored with it
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I'm due November 12th, have 1 child & 1 angel baby & live in Nederland, Texas
posted 28th Feb
born******
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I'm due November 12th, have 1 child & 1 angel baby & live in Nederland, Texas
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