Baby has hypoplastic left heart syndrome..

Hey mommies!!! This mommy here has been through a lot with this baby... I am due on June 23rd and been told my baby will be having three stages of surgery... Scared mommy here... I have one healthy baby boy and now this one... I was wondering if anyone ever heard of this and if they know if I'll go into labor early... I have been contracting for two weeks straight and it's every five mins my ob said it was Braxton hicks... I have another doc appt on Thursday... We will see.. Please respond if you can

I have a little boy with hlhs. He was born in November a week late by c section. He has had his first surgery the Norwood at 5 days old and we are waiting for his next surgery until he is 6 months old. We were in the hospital for a month before we brought him home. If you have any questions email me at cjdavidge@hotmail.com. I remember how overwhelming it was when we first found out

Thank you I just got this on here... Yeah I am very stressed out

If you can try to tour the hospital your little one with have their surgery at. Some of the stuff is hard to see but its even harder when you see your own go thru it and don't have any heads up. It's important to remember that all these babies are different. Some of them come home on oxygen almost all come home on a feeding tube which I promise isn't so bad in the scheme of things. I've been told I'm lucky because my little guy is happy sleeps fairly regularly and seems pretty healthy aside from his scars, the many meds we have to give him and being very careful who is over but its hard to feel like when your child has half a heart. If i you want I can send you pictures of before and after surgery if you can't go to the hospital but they are hard to see. I took pictures only because I hope I can show him how strong he was.

Well I'll be delivering down at Children's hospital of Philadelphia and I am taking a tour on April 3 I am just scared cause I don't want to lose my lo and I already have depression I don't want it to come on after even though I know it will... I am just hoping for the best... I just feel like there's apart of me that is broken... I just feel alone... Even though I have a 1year and my husband and family support just still scared...

I delivered at university of Michigan, not too far. CHOP is one of the best hospitals in the world for this . There is a girl I found on Facebook that had surgery there and is now 22 and pretty amazing. I still feel alone sometimes and like no one can understand the burden Im carrying. I worry that I caused this some how. I go threw times where I hate everyone with healthy children. I will worry everyday for the rest of my life that I'm goin to loose him. I read a book called heart warriors when I wa pregnant. The little boy has a different condition but the emotions are definatley right on target. It made me feel a little less crazy and put some of my emotions into words like anticipatory grief. All this not knowing is awful. Do not be afraid to ask for help because this is hard being a heart mom really sucks sometimes but these kids are special and important. Ask questions too I had lists and lists of questions and asked the same ones over and over again until I understood exactly what was happening. Also I just read an article a few years back that said chop had over a 98 percent success rate I know percentages mean nothing when your child is at risk but that's pretty good.