When I was 9 days old my mom found me blue in my bassinet next to her bed. I wasn't breathing and soon after she found me I fell unconcious. My dad put me in his lap and drove to the hospital (don't ask me why they didn't call 911. I don't know.). I'm told that he realized that if he pressed down on my tongue I could breathe, so he held my tongue down as he drove. From the local ER I was rushed to Atlanta and stayed for a while. They could find absolutely nothing wrong with me. They told my parents that if my mom hadn't of found me when she did, I would have died. They called is a case of Missed SIDS. That if I had of died, I would have been classified as a SIDS case.
I was finally sent home with a heart and breathing monitor. There are a ton of baby pictures of me with wires hooked up to me.
I honestly think the lack of oxygen damaged me a little. I have always been terrified of holding my breath for any reason and can't for longer than like 3 seconds before I panic. I also have Tourette's Syndrome (with no family history), ADD, OCD, and a severe anxiety disorder.
All my life, I have never met or heard of anyone who went through that. I'm curious if any of you have gone through something like this or know someone like this. I know a lot of people don't believe me and say no one can survive it.
Apparent life-threatening episodes (ALTE)
A number of babies have these episodes, which in the past have sometimes been called ‘near miss SIDS’
. An ALTE is where the baby is found limp, sometimes blue, sometimes unconscious or unresponsive, and not breathing. Different amounts of stimulation are needed to revive babies in this condition, ranging from noise or gentle movement of a limb to CPR. This is terrifying for parents, and these babies are usually then admitted to hospital for close monitoring and investigation.
The causes of these episodes are varied and include:
- convulsions (fits)
- choking, sometimes caused by food coming up from the stomach and going down the wrong way (gastro-oesophageal reflux)
- the heart losing its rhythm (cardiac arrhythmias)
- the baby ‘forgetting’ to breathe (apnoeic episodes) – this is usually caused by an immature central nervous system, but might also be caused by certain viruses, such as respiratory syncytial virus.
There is often no cause found for an ALTE.
The relationship between ALTEs and later SIDS isn’t clear, although up to 13% of infants who die from SIDS have had an ALTE. If a cause for the ALTE is found, it’s treated. If no cause is found, parents are assured it’s unlikely to happen again.
Sometimes an apnoea alarm is used to monitor the baby’s breathing. Apnoea alarms aren’t totally reliable and can cause great anxiety in parents, who often say they lie awake at night waiting for the alarm to go off. There’s no evidence to show that an apnoea alarm reduces the incidence of SIDS