i wish i had someone who understands...

exactly how i am feeling. imsorry but i need to vent big time.

my two year old has austism spectrum disorder. we are dealing with it just fine and are getting her the help she needs.

this is more about the baby im expecting. she has a heart condition called Transposition of the great arteries (tga). it means without the life saving surgery between 7-10 days old she will die.

i wish someone would understand how i am feeling over all this. i tried to vent to a friend but all she seem to do is bring it back to her. i got comments like how i am lucky i got this far in my pregnancy because both her kids were born by now. i understand premies are hard too, but its not the same as what i am going through. the length of my pregnancy has nothing to do with how i am feeling. she has no idea what its going to be like to have to see your child on life support after having open heart surgery. she doesnt know what it like wondering if your child will even make it. it seems like every time i try to tell er how i feel she always turns it around about her kids.i know she means well, but its really starting to bug me. she even went as far as to tell me shes pissed that teens have healthy babies and she didnt. i would never wish this on anyone. especially teens. im upset because i feel like i got cheated out of the new born experience cause she will be in the hospital for atleast 4-6 weeks. with my first she was also in the hospital a week.

sorry for the vent. i needed to get it out

your friend probably just doesn't know what to say, really....

i don't know what you're going through, but i have heard some things and seen some of your posts before (april due date thread), and i really feel for you and your situation. i know it won't be easy, and i wish you the best of luck in your labor and delivery and in the safety of your baby in that important first week for her! stay strong!

although i dont know excactly how you feel. my nephew has autism. Ive been there though it all with my sister. If you need someone to talk to you can always pm me.

Im sorry. I can't say I understand because I had three healthy deliveries... But I can imagine how you must be feeling. I know the feeling of not knowing if your child will make it. We almost list our oldest when he was 7 weeks old.

That is such a major surgery and it must be so scary to think of, but we are so advanced in medicine now and just have faith that the doctors know what they are doing and will be able to make your baby healthy. I pray for a speedy recovery for your LO. Im sure it will all be okay. Im sure these doctors have done surgeries like this many times on newborns and know what to expect. Just be strong. Baby can feel your strength and good vibes!!

And.... Your friend is a jerk for turning such serious problems you are dealing with on herself abd looking for sympathy in your time of need. That's pathetic. I think you should tell her how it makes you feel. She may not notice she's doing it.

I'm so sorry. I don't know how it feels. My friend's baby had to have open heart surgery a couple of weeks ago and came out just great, if it helps.

thanks everyone. i just needed to get it off my chest.

Thoughts and prayers for you and your baby girl.

you have people that understand what your going thru...

it might not be that long either, my son was out of the hospital 8 days after his surgery. could have been sooner but i freaked and wouldnt let them discharge him for 2 more days. they also dont always need life support, its actually a rareity that tga kids need ecmo.

i know my son was a lucky one, but he came back from surgery on only 2 heart meds (dopamine and milrinone) and was off them by day 2 post op. he extubated 4 days post op and was off o2 by 5 days. the only complication he had was a few SVTs after surgery that they had to pace him out of, but other than that it was all smooth sailing with his first surgery.

i strongly suggest, again, that you do your research while you can to get the best outcomes possible. good luck and i hope you have smooth sailing <3