Quoting ☠BryBry's MuM☠:" thank you! she passed 11-7-03 just shy of her 49th bday nov 15th. i hate it so much to! wait ... [snip!] ... tested after she had it the second time and she doesnt have the gene. she thinks that we dont have it but i should get tested!"
My son had rhabdomyosarcoma which is a tumour of the soft muscle tissue, like breast cancer is. For some unknown reason a lot of the mothers of children with rhabdo have breast cancer there may or may not be a link.
Yes, you can get gene testing done....we had the option to test our son. There is little understand to rhabdo, why it happens, where it comes from, how to cure it. So testing our son for the P53 gene was an option, we finally decided to do it after he was cancer free, to help the research. But our oncologist gave us some good information....including - do we want to live knowing he has it and will most likely get cancer again? As well as showing us that if he does come back with gene, we may never be able to get him life insurance (we havent been able to all his life due to the cancer - our agent is hoping after 5 years cancer free he may be able to get us some).
So really...its a very tense decision with a lot of factors coming into play. As much as we want to help research.....we decided the risks to our lives was too severe.
Ugh...that sounds so selfish