Forums > The Photo SpotPage 1 2by: Reise's Mommy

Update

posted 6th Feb
I went to NICU twice today to see Miles and they told me he's currently getting 5 liters of air pressure through his little tube. They're going to start weaning him tomorrow and will try to wean a liter a day. If he doesn't handle that they'll go to weaning a half liter a day. He can start trying to feed by mouth when he gets down to 2 liters and once he feed exclusively by mouth for 48 hours and is completely weaned off the air pressure he can come home. So, a minimum of 5 days and that's if everything goes perfect. He seems SO much better than he was just yesterday, though. When I saw him today he was fine with being touched, was looking around the room, it was the first time I've really seen him awake. A very dramatic difference for just one day. When I was holding him tonight he was rooting around my breast, too. That just made me sad because I want to nurse him so badly and I can't   It also made me leak every where -__- lol. Anyway, here's some pictures  




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I have 2 kids & live in Kentucky
posted 6th Feb
Just out of curiosity, I've never dealt with a NICU baby, but why can't you nurse?
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I have 1 child & live in Faribault, Minnesota
posted 6th Feb
Quoting Kylees Mama:" Just out of curiosity, I've never dealt with a NICU baby, but why can't you nurse?"

It's different for every baby but with him he needed help breathing and so a) he still has to learn to breath and eat at the same time and b) the amount of air pressure they're giving him would blow all food into his lungs   He did have a tube down his throat to give him oxygen too, so I couldn't feed him with that in his mouth. The orange tube in the pictures is a feeding tube. They've been giving him my breast milk that way.
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I have 2 kids & live in Kentucky
posted 6th Feb
<blockquote><b>Quoting Reise's Mommy:</b>" It's different for every baby but with him he needed help breathing and so a) he still has to learn ... [snip!] ... him with that in his mouth. The orange tube in the pictures is a feeding tube. They've been giving him my breast milk that way."</blockquote>




That's too bad. He's adorable though mama! Just keep your heads up, soon enough he'll be at home with the family.
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I have 1 child & live in Faribault, Minnesota
posted 6th Feb
Quoting Kylees Mama:" <blockquote><b>Quoting Reise's Mommy:</b>" It's different for every baby but with ... [snip!] ... That's too bad. He's adorable though mama! Just keep your heads up, soon enough he'll be at home with the family."

It's killing me that they're going to be giving him a bottle. I'm so afraid he won't ever latch afterward. DS1 had issues latching and he never had a bottle or a paci. DS2 has already had a paci and will be getting bottles in a couple of days. I wish I could stay there 24/7 so they wouldn't give them to him, but I can't. I just have to hope it won't be too hard to reverse   It makes me want to cry.

Just hoping everything goes as smoothly as possible and maybe he'll still be home at the end of this weekend.
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I have 2 kids & live in Kentucky
posted 6th Feb
So cute! Hope its just a short nicu stay for you guys
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I have 1 child & live in Lodi, Ohio
posted 6th Feb
this made me cry. hes such a cutie! my heart breaks for you mama and can't wait till you get to bring your strong handsome little man home
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I have 4 kids & live in Wahiawa, Hawaii
posted 6th Feb
Quoting Cassie♥:" this made me cry. hes such a cutie! my heart breaks for you mama and can't wait till you get to bring your strong handsome little man home"

Thank you   I can't either. I was a little upset when I realized it was going to be longer than we thought, but I'm just taking things one day at a time. Now if only those days weren't so long >.<
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I have 2 kids & live in Kentucky
posted 6th Feb
Quoting Dylan Jo's mommy:" So cute! Hope its just a short nicu stay for you guys"

Thank you   Me too. It's been 5 days already and it's been the longest 5 days of my life. Thinking of spending another 5 days like this just makes me so exhausted and sad.
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I have 2 kids & live in Kentucky
posted 6th Feb
Quoting Reise's Mommy:" Thank you   I can't either. I was a little upset when I realized it was going to be longer than we ... [snip!] ... to be longer than we thought, but I'm just taking things one day at a time. Now if only those days weren't so long >.<"


Seriously, I can't imagine waiting my entire pregnancy, and then being forced to wait another 2 weeks...but atleast hes getting healthy and things are looking up! All that matters is that he does come home   even though the wait is rather unpleasant haha
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I have 4 kids & live in Wahiawa, Hawaii
posted 6th Feb
Quoting Cassie♥:" Seriously, I can't imagine waiting my entire pregnancy, and then being forced to wait another 2 weeks...but ... [snip!] ... healthy and things are looking up! All that matters is that he does come home   even though the wait is rather unpleasant haha"

If he was really early or something it would have bothered me, but I don't think I would have felt so cheated. I dunno if that's the right way to phrase it. I just thought we were in the clear because I passed the 37 week mark and then he was still not ready when he decided to show up   I am glad he's doing so well now, though. I'm hoping maybe he does so well with the weaning they can wean extra. He doesn't really act like he needs it. His stats were completely awesome the whole time I was there tonight   It's not AS bad now that I can hold him. Until today I could just look at him. I could touch, but no soft touching, just pressure, like a hand resting some place but no stroking or rubbing or anything over stimulating. Now I can hold him and I feel a little better. Maybe the time will go faster now. Oh, if only lol.
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I have 2 kids & live in Kentucky
posted 6th Feb
Quoting Reise's Mommy:" Thank you   Me too. It's been 5 days already and it's been the longest 5 days of my life. Thinking of spending another 5 days like this just makes me so exhausted and sad."


right there with you, its been 2.5 weeks for us. only thing we are working on now is eating
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I have 1 child & live in Lodi, Ohio
posted 6th Feb
<blockquote><b>Quoting Dylan Jo's mommy:</b>" right there with you, its been 2.5 weeks for us. only thing we are working on now is eating"</blockquote>


He was technically 2.5 weeks early too. 37w4d. He's down from 5 liters to 4 now and may still go down again today since he did so well the first time. We can't start working on eating until he's at 2 liters. How long have you guys been working on eating? I'm hoping it doesn't take him very long to figure it out.
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I have 2 kids & live in Kentucky
posted 6th Feb
Quoting Reise's Mommy:" <blockquote><b>Quoting Dylan Jo's mommy:</b>" right there with you, its been 2.5 ... [snip!] ... he's at 2 liters. How long have you guys been working on eating? I'm hoping it doesn't take him very long to figure it out."
Dylan was 6weeks early. We've been working on eating from a bottles for almost 2 weeks. She will drink some but still gets tired and falls asleep or stays awake and just plays with the nipple in her mouth.
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I have 1 child & live in Lodi, Ohio
posted 6th Feb
<blockquote><b>Quoting Dylan Jo's mommy:</b>" Dylan was 6weeks early. We've been working on eating from a bottles for almost 2 weeks. She will drink ... [snip!] ... 2 weeks. She will drink some but still gets tired and falls asleep or stays awake and just plays with the nipple in her mouth."</blockquote>


Ohhhhh I misread your first post. Sorry. They're concerned he's not going to know how to eat and breathe at the same time. I hope it only takes a few days but I'm trying not to get my hopes up   He'll be a week old tomorrow and his brother still hasn't gotten to meet him. And the soap in there is making my hands break out in rash. I'm just ready to get this over with. I bet you are too   Good luck, momma. I hope she gets it soon so she can come home.
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I have 2 kids & live in Kentucky
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