My son was diagnosed with neurofibromatosis

It will be confirmed by an eye doctor and a genetics doctor. I'm so sad and frustrated. Why my baby? I'm not wishing this on anyone but it still bothers me. Does anyone else's kids have this?

I have it,luckily my son doesn't
Does he have type 1 or 2

Pm me if you need to talk I can answer any questions

what is it?

Quoting *PeanutButter*:" I have it,luckily my son doesn't Does he have type 1 or 2 Pm me if you need to talk I can answer any questions"

Im not sure. Pming you shortly

Quoting Crazyhazel89:" what is it?"

It can cause problems with bones, skin, and central nervous system and something else but cant remember

oh and it can cause legions in the eye and growths

My son doesn't have this but back in November we got his diagnosis. That day my world ended. But remember he's the same baby as he was before you received the news. I've had plenty of meltdowns in the shower, and screamed into pillows. Your son is adorable. Keep your head up and stay strong.

my ex boyfriend and his mom have this( NF1)
I'm very sorry he'll have to deal with this.
I wish you all the best
stay strong for your little one!

Thank you  Its very hard to deal with. We get the confirmation in a few weeks and again on the 7th of march.