Quoting P3RvYmCp3rv:" And I'm sure if weaned off of the meds and they were making a difference she would have her put back on them. I'm sure she isn't that mother that just doesn't give a smurf. "
The thing about my daughter is the meds will help, at first, hen after a few months her seizures start getting more and more often.
she used to have hundreds a day on this one medicine, and they finally switched it and it dropped to about 75 seizures a day, and then they added another one.. and she is around 30 a day, id say 1 or more an hour. SOmetimes she gets clusters with like 4 in a row and then none for a few hours.
every EEG she has ever had has shown seizure activity along with other things like brain slowing and stuff. I feel like it sometiems help, and then stops helping and her seizures increase. obviously if it helped her I would keep her on them. I just want her to be normal. and be able to play with other kids without tehm staring at her and calling her weird becuase she wont talk. im just over it.
people take their normal kids for granted and I would literally give her my life if i knew she could be normal, and have kids and a family. just sucks... thats all, im just down on it today. nomrally it doesnt bother me, but with the fear of cancer lingering, im just so stressed out.