Quoting 36-24-36OnlyIfshes5-3:" The only issue is w/o meds her seizures will likely be very life threatening. John travolta is a case ... [snip!] ... disease of possibly autism. He died very prematurely. Those with untreated epilepsy have a very short life expectancy."
im lucky in the fact that my daughter seizures arent tonic clonics. absence seizures, so she usually doesnt fall or lose concciosness.
My daughter has a higher risk for just not waking up in the morning too. its scary. SED is like SIDS for people with Epilepsy. Its scary.. I google about her chromosome issue and it talks about cancers and other things which is worrisome for us becuase she is full of bruises and getting bloody noses and we are waiting on some results of another blood test since her CBC was off. I told people on FB it was normal. but it wasnt. My mom is convinced my daughter is very sick and im trying not worry her.
deep down I feel like I wont get to know her because she wont live long enough.. its terrible.. I think about it everyday.. it makes me so sad.