Endometriosis on appendix

posted 28th Jan
Had my appendix removed on the 23rd and thought the pain was gone, but after a few days the pain started slowing coming back. It's not completely back yet, not nearly to the point as it was before I had it removed. I also had adhesions on my ovary and fallopian tube that was removed, and some endometriosis cauterized (not sure if that's what the did), but I had four pictures take, one was of the appendix, the other was of the fallopian tube, and another was where the endometriosis was (I think), and the fourth was where they took it out. I knew I had endometriosis a long time ago, but it was taken care of, and only just now did I realize it can come back in the future. Also, when I had my hysterectomy last May, I was told I had adenomyosis and not endometriosis(even thought a doctor told me I had endo back in like 2009ish. I didn't realize that after a hysterectomy there are still implants that can cause pain, even without a uterus. The doctor that did my hysterectomy said everything looked great. I had a lot of pain after my third child was born in 2008 and was ignored for a while. It took me 4 months to get a doctor to diagnose me this time, even with all my history. So, now I wait til my 2 week appointment to figure out what to do in the future. I knew something was wrong with me, I just didn't know that endometriosis could even affect the appendix. Has anyone with endo dealt with this before, or anything like it? Did the pain remain after surgery, and how long before it was completely gone?
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I have 3 kids & live in Tulsa, Oklahoma
posted 28th Jan
How do you mean the endo was taken care of?

My gyno told me its not possible to remove the displaced cells....
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I have 1 child & live in Perth, Australia
posted 28th Jan
Quoting Manda♥Bella:" How do you mean the endo was taken care of? My gyno told me its not possible to remove the displaced cells...."

My uterus was completely removed, and my appendix was removed..thus taking care of those cells..but there was places that had endo tissue that was cauterized off. I think that's what they did, as far as I know, I don't think there were any other cells implanted to other parts of my body.

Before I was told I had endometriosis years ago, but then I had my uterus removed and was told it wasn't endo but adenomyosis. I'm also very confused because I do remember the doctor talking about the fact that my uterus was fused to the abdominal wall.wouldn't that be outside of my uterus and not inside? My chart says adenomyosis though, and not endo, which was also why this new doctor scheduled the laparoscopic diagnostic. He was certain it was my appendix and he was right, but the doctor that did my hysterectomy told me that everything looked great. So those implants had to be there before my hysterectomy, since the cells come from the uterus right? So when I had my lap done with the doctor before that in 09ish, he never mentioned anything about it returning. I guess, I just figured regardless of what it was, after 2 years of not a lot of pain except for periods, then a hysterectomy. I was done with it. I don't understand why he didn't talk to me about treatment. This is the same doctor that said my pain was mostly from bladder infections/uti's and would prescribe me antibiotic after antibiotic. (He was also put on suspension for malpractice).
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I have 3 kids & live in Tulsa, Oklahoma
posted 28th Jan
I didn't have endo on my appendix but I have it all over in there and I had surgery on November and am still in so much pain. It's the adhesions and scar tissue. They can't really remove that.
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posted 28th Jan
thanks for the replies, it's nice to know I'm not going through this alone. Every twinge of pain, I'm scared it won't go away. I don't want to live like this  
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I have 3 kids & live in Tulsa, Oklahoma
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