CHARGE syndrome

Anyone on here have a child with a mild form of CHARGE syndrome?

With very few of the symptoms, like no cleft lips, or facial paralysis (sp?) hearing loss or coloboma's of the eyes.

Just choanal atresia or choanal stenosis, and the other mild symptoms?

My dd is 11.5 months old and has a few of the milder symptoms of CHARGE syndrome, And we have not been told it may be this, but I am hoping I can talk with someone who's child has it, in a milder form.

Thanks.