Starting to worry

Ok, so I am starting to worry on issues I always thought were just small factors in my dd's health.

Our scare with down syndrome when I was pregnant turned out to be nothing (didnt matter anyways).
Apon her birth and finding out she had anal atresia (misplaced anus) and Choanal atresia stenosis (cant breath through her nose)
With further findings of possible growth disorders were being talked about by the time she was 2 months old. Saw genetics at 8 months old, they did NO testing but said she was fine and jsut small.

So here we are at 11 months old weighing 15lbs and 26 inches long...she has not grown anything in height in 3 months.

In september dd was diagnosed with penumonia. In october she was still sick after being on puffers on and off (by dr's orders) Novemeber rolled around she was still sick, numerous Dr visits all say just a cold, finally the ER does a chest x-ray, No penumonia, they said she never had it, stop the puffers ASAP, they were making her sick  

So we roll through december back and forth to the Dr's some more, same thing just a cold, it will go away.

So here we are in January 2013 and dd is very sick   been over 24 hours since she has kept food down, fever no peeing coughing gagging choking full of thick green mucus. we spend the day at the ER for the dr to say SHE MAY HAVE A COLD. I was told to not give pedialyte at all,and we were sent home with nothing more then that.

I am upset and scared my sweet baby has some kind of issue they are not seeing. i have spent the last few hours linking together little facts from all areas of her medical issues.
i am coming to realize that her breathing issues are very serious and should have had surgerary at birth. It can cause a constant drainge and dripage of nasal fluid into the lungs and cause serious infections......MY question is, why wasnt this looked into, since every dr she has seen knows her condition?

Choanal atresia can cause growth impariments etc......My almost 1 yr old is the average length of a 4-5 month old.

I am starting to worry alot here. I feel like I am getting, well dd is getting ripped off in her health department and I dont know what to do anymore.
I am takingher back in tomorrow and I am not leaving till they actually look at her, like actually look at her and do and run tests. Something is wrong with her and I cant help her unless they take the time to look at her.

Sorry its long, I just needed to vent and feel better, which I dont at all. Not till lo gets better.

I can't even begin to imagine what you must be feeling. I really hope that those doctors can pull their heads out and do something for her. Poor girl.

Can you take her to a different ER?

Quoting Patti.:" Can you take her to a different ER?"

Where would I take her? We have 1 ER and thats it.

Quoting crazy coupon lady:" Where would I take her? We have 1 ER and thats it."

I didnt know if you had another hospital in the area that you could take her to since you werent happy with how they were at that one.

try a diff er if you can or maybe a childrens hospital? but I deff think you need to find a better place for her and my thought is if you have a childrens hospital around your area they may be able to help more as they deal with children...best of luck to you and your little one hope you get some answers and your little one gets better very soon

Quoting Brandi Milam:" I can't even begin to imagine what you must be feeling. I really hope that those doctors can pull their heads out and do something for her. Poor girl."

Thing is, everyone is like oh she is sick again...she never got better not since september.
Every dr tells me the samething over and over aging,,,,and today it pissed me off we got there (ER) at 11:30pm fianlly saw the dr at a little after 3pm, she had been in the same diaper since 10am and it was bone dry...it was dry at 4 still but then she had diarreha sp? that was it all day today.

I am frustrated as all hell right now.

I would find a completely different doctor and/or request a referral to a specialist.

You could also look online for support groups for parents of children who have issues like your DD and maybe they would be able to point you in a good direction. Or google doctors who specialize in DD's issues and write them to see if they'd look at her (or at least her medical records).

I'm very fortunate that not only did DD have access to a world renouned pediatric urologist who specialized in her issue shortly after birth and now that he's retired, we have access the the Mayo Clinic in Rochester, MN. I can empathize what you're going thru, I know how I would have felt had we NOT had the care we did

How far away is a Childrens Hospital? It might be worth a trip for all her medical problems

Quoting clay matthews:" I would find a completely different doctor and/or request a referral to a specialist. You could also ... [snip!] ... Clinic in Rochester, MN. I can empathize what you're going thru, I know how I would have felt had we NOT had the care we did"

Its hard to explain, but no childrens hospital close to where I live, we used to ravel to go, but they released us from her specialist after genetics cleared us.

No specialist to help with choanal atresia around here at all, its actually really rare to have a child born with it.
Which brings me to a conclusion that the dr's know nothing aboutr it therefor dont know how to treat it.....But I may be giving them to much credit on that, IDK.

The more I read online the more I worry (google is not your friend) but what option do I have trying to understand a medical condition hardly anyone has?

So many things are linked to it, like CHARGE syndrome cystic fibrosis (I know I spelt that wrong)

Quoting Patti.:" How far away is a Childrens Hospital? It might be worth a trip for all her medical problems"

6 hrs away.

But you cant just walk in to sick kids hospital, you need to be refered by your Dr...I know, we have been there a few times already.

Quoting crazy coupon lady:" 6 hrs away. But you cant just walk in to sick kids hospital, you need to be refered by your Dr...I know, we have been there a few times already."

Oh I know you cant. I have a friend with a daughter who has severe medical problems to the point shes a medical mystery.
I just cant believe a doctor wouldnt help you try and find someone to help her.

Quoting Patti.:" Oh I know you cant. I have a friend with a daughter who has severe medical problems to the point shes ... [snip!] ... problems to the point shes a medical mystery. I just cant believe a doctor wouldnt help you try and find someone to help her."

Biggest issue, is that pedi here dont treat illness. Only prolonged medical concerns. I am trying to get in to him, but he is still not back from christmas holidays, my next appointment is feb 12.

When I was told she had penumonia I called for him to see her and they said no, we dont do illnesses like that. He checks her weight and height and thats it. I even have to get her vaccines at the health unit cause the pedi here dont do them.
I have no idea what to do.

Ya my kids cousin has major mental disibilities he is 8 or 9 and they have no idea what he has either....they thought autism and aspergers and some other things, a genetic testing showed he was fine, but he is not. They cant find help either.

Quoting crazy coupon lady:" Biggest issue, is that pedi here dont treat illness. Only prolonged medical concerns. I am trying ... [snip!] ... autism and aspergers and some other things, a genetic testing showed he was fine, but he is not. They cant find help either."

What kind of pedi doesnt deal with illnesses? Can you find a different doctor? Thats just smurfed up

Quoting Patti.:" What kind of pedi doesnt deal with illnesses? Can you find a different doctor? Thats just smurfed up"

Here you have to fall into a spectrum if you will to get a pedi. If your child does not have a disorder of any kind they will not have a pedi at all. We have 5 or 6 pedi in the whole city.

Family Dr's are the go to Dr's for illnesses here. But the catch is, we dont have many of those either, most ppl in my city dont have a family dr at all. All our Dr's are in the after hrs clinic business and are not all that good at all.

I dont have a family Dr at all or my kids....we are on a waiting list and have for about 6 yrs now.

Dont get the wrong idea about our health system tho. Its not all Canada or Ontario at all. Where I live is really small and we lack in alot of areas and Dr's are our biggest issue. Its terrible, and even more so when ppl like my 11 month old get tossed to the side for whatever reason.