update on Penelope

well today we took my youngest Penelope to a P.T evaluation and it turns out she has a mild case of Torticollis with a some P.T and some at home exercises she should be perfectly fine  

Quoting MonkCakes:" well today we took my youngest Penelope to a P.T evaluation and it turns out she has a mild case of Torticollis with a some P.T and some at home exercises she should be perfectly fine  "

I have links in my profile to threads following DD's tort if you're interested.

She was diagnosed with congenital torticollis around 4 months, she's 11 months now and with the help of PT and exercising you would have never guessed.

Quoting ★ Raych ★:" I have links in my profile to threads following DD's tort if you're interested. She was diagnosed with ... [snip!] ... torticollis around 4 months, she's 11 months now and with the help of PT and exercising you would have never guessed."

that is awesome to hear! I will DEF look at them I hope it helps her a lot did it ever effect her sitting/crawling and stuff like that ? she is a little behind and I wanted to know if that was bcuz of the Torticollis or just her lol

Quoting MonkCakes:" that is awesome to hear! I will DEF look at them I hope it helps her a lot did it ever effect her sitting/crawling ... [snip!] ... and stuff like that ? she is a little behind and I wanted to know if that was bcuz of the Torticollis or just her lol"

She'll be a year this month and just started standing on her own. Every child is different, for example my oldest, who is 10 now, didn't walk until he was 18 months. My 5 yr old walked at 10 months.

There were some minor delays with DD. But her PT is quite amazed at how well she is doing and she's pretty much caught up. She was only about a month behind.

It takes a lot of work at home on your part to keep up with exercises, we used play time and diaper changes for DD, 10 mins at a time if she allowed it. Gave her breaks when she became fussy. But she adapted well and it became routine. We have home visits with her PT just to document her progression and learn exercises. PT lasted about 45 mins, twice a month.

It'll get better, promise  

If you have any questions I'll be happy to answer if I am able. Feel free to PT me any time.

Quoting ★ Raych ★:" She'll be a year this month and just started standing on her own. Every child is different, for example ... [snip!] ... It'll get better, promise   If you have any questions I'll be happy to answer if I am able. Feel free to PT me any time."

thank you so much with the info it really helps! I wish we would have gotten in sooner then 8.5 months I hope its not too late...I said something to the dr when she was 4 to 6 months but the dr kept saying it was no big deal and all that I really hope its not to late  

Quoting MonkCakes:" thank you so much with the info it really helps! I wish we would have gotten in sooner then 8.5 months ... [snip!] ... to the dr when she was 4 to 6 months but the dr kept saying it was no big deal and all that I really hope its not to late  "

How mild is it? I can hardly tell just by looking at photos on your profile but I do see a slight tilt in some pics. River's wasn't extreme IMO, but I would say mild I guess but only because she could turn the other way but immediately turned back. If we tried to force it she would fight us and get fussy. She would always have her head tilted up to her left with her right ear down touching her shoulder. Now you can't even tell.

Here is a pic to give you a general idea..

She was only 5 1/2 weeks here..

And then at 4 months when we decided it was time to get some help:



Sometimes they grow out of it one their own. Others could lead to more physical issues as they get older if not addressed properly.

How is Penelope's posture when she sits? Does she lean or does she sit straight? At first Riv would lean to her left, but as time went on and the more sitting she did her muscles strengthened and she sat more straight. However, one shoulder still sits a tad lower then the other, but it's not noticeable. When she would crawl (army crawl) she would only use one side of her body, mostly her right. Her PT said her muscles were tight and so we focused on having her reach for things using her left side.

She wears a helmet now b/c she developed some flatness (plagiocephaly) on the back of the left side of her head for the way she would lay before she was able to sit on her own.

Here's another photo of her now with her helmet, she still has a slight tilt and that one shoulder is still lower than the other:


Things are getting better for her and I'm very optimistic they will get better for your Penelope. It's not too late  

awww she has gotten so big so pretty too!!she can turn her head really good its just stiff when she turns it to the right and same she will start to fight me

ppl cant tell at all that she has it only I can really bcuz im around her 24/7 she also has a misshapen head she called it a mix between 2 really big words that I cant remember she said on a scale of 1-4 its like a 1 1/2 and deoes not need a helmet here is a pic of her sitting she kinda leans to one side when shes tired or just doenst want to sit right she leans more

Quoting MonkCakes:" awww she has gotten so big so pretty too!!she can turn her head really good its just stiff when she turns ... [snip!] ... here is a pic of her sitting she kinda leans to one side when shes tired or just doenst want to sit right she leans more "

I see what you mean, especially the lean. Her dimples are so cute!

Quoting ★ Raych ★:" I see what you mean, especially the lean. Her dimples are so cute!"

haha thank you! yeah its not like OMG noticeable but her dad and I sure notice if that makes since

Quoting MonkCakes:" haha thank you! yeah its not like OMG noticeable but her dad and I sure notice if that makes since"

Makes perfect sense. When we were in the process of trying to get Riv her helmet I felt so dumb b/c everyone kept telling me they don't see how she needs it. But she has so much hair you can't tell unless you feel for it. And then when she bathes and her hair is wet it becomes even more obvious. I felt like I had to do so much convincing to get her Pedi to even refer her to a neurosurgeon (which pisses me off b/c she could of had her helmet sooner at 8 months instead of just now getting it at 11 months).

Quoting ★ Raych ★:" Makes perfect sense. When we were in the process of trying to get Riv her helmet I felt so dumb b/c ... [snip!] ... (which pisses me off b/c she could of had her helmet sooner at 8 months instead of just now getting it at 11 months)."

OMG you sound JUST like me I swear word for word that is what I went thru everyone said I was crazy and just freaking out over nothing I stayed up crying some nights thinking I was nuts and I just need to forget it but never could

Quoting MonkCakes:" OMG you sound JUST like me I swear word for word that is what I went thru everyone said I was crazy ... [snip!] ... just freaking out over nothing I stayed up crying some nights thinking I was nuts and I just need to forget it but never could"

Determination, persistence, and patience really pays off. Keep your foot down and your head high.

Quoting ★ Raych ★:" Determination, persistence, and patience really pays off. Keep your foot down and your head high."

yes I deff will thank you so much for talking to me it has really helped

Quoting MonkCakes:" yes I deff will thank you so much for talking to me it has really helped"

Any time