i was born with Neurofibromatosis type 1,basically what that means is the bones in my right leg are severely deformed.they grew in the shape of a "S" and i started wearing a leg brace at the age of 3 months.despite wearing the braces to correct the issue it did not work. my leg would spontaneously fracture from the pressure put on my bones from them trying to grow.at the age of 3 i had my first operation.they removed my hip bone and placed it in my right leg with a metal rod to try to prevent further fracturing. but after 3 surgeries and being in a lower body cast 3 times for 6 months each they realized my leg could not be saved.my leg had completely stopped growing,it was 3 inches shorter than my left and i had the muscle mass of a 4 year old.Then at the age of 7 I
decided that the best option would be amputation.my parents could not make such a life changing choice for me and after talking to the drs and understanding what i meant i told them to amputate it. on March 3rd 1999 i went in for the operation. when they amputated it they discovered nothing but mangled nerves and tumors in the lower part of my leg.(i get the tumors everywhere)
since then i have had 5 more operations just on my right leg,1 on my left leg and 3 surgeries on my head all to remove tumors. and in 2 weeks im having yet another surgery on my right leg to reconstruct the ligaments in my knee.
me at 2 years old,before any surgeries. wearing my tiny leg brace
the scar from my amputation