Transposition of the Great Arteries

my daughter was born 12/17/12 and for the first few hours she was perfect. The second time I go to feed her, she wasn't eating and I contacted the lactation consultant. She couldn't get her to wake up real well and checked her oxygen in her blood. It was bad and she was rushed to Hershey Medical Center.
She has Transposition of the Great Arteries. She was to have a surgery to flip them around but turns out she had a stroke which is going to push back the surgery. I am over an hour away from home with my husband now and we were hoping to have the surgery this past friday. Now she has to wait about 10-14 days.
It's turned into the worst time of my life and I'm aching all over from it. It's Christmas time and my almost 5 year old son is staying with family while we stay here. It has been absolutely devastating first off and then to have to wait two weeks... we are both heartbroken to be away from our boy but can't leave our daughter here knowing she's in the condition she is in.

Success rate for this surgery is 95% but with her having this stroke there is an area in her brain that is weak and I don't know what that brings our odds to. I'm so scared and I just ask that you keep us in your prayers. We will not be home until probably middle of January if we are lucky.

My father has this and is the first person recorded in the US to have survived the surgery for it - he's 50 now with 4 children and 5 grandkids - keep your hopes up! My dad belongs to a facebook group for people who have this condition, would you like me to ask him for a link?

I am so sorry you are going through this - especially just in time for the Holidays. Your family is in my thoughts!

My thoughts are with you and your family at this time! Stay strong!

Alright so we are still waiting for surgery. My daughter, Olivia Day, is in the PICU getting stronger and stronger every day. On January 7th she will be having the arterial switch surgery done. This is a big deal for us. On January 4th, we will be having an mri done to check for any signs of bleeding or areas wanting to bleed that may cause complications during surgery. She has been doing wonderful up until this point so I am on edge praying she can make it to the mri and have those results turn out well and then make it to the surgery and afterwards no complications. I want to take her home so badly and to hold her and show her off. I'm thanking God for giving her a fighting chance.

On top of being in the hospital almost 2 full weeks, I am almost positive I have mastitis. My body aches beyond belief and I feel fever then chills then fever then chills and my one breast is red and very sore. I will be calling my OB tomorrow to let them know. Lately I have been feeling like I want to just die. This is a lot to deal with and I ask myself why me? why my child? And I don't think I'm strong enough to be going through this. If it weren't for my amazing husband, my healthy little boy and that little baby girl who's fighting for her life in the hospital... reminds me that I can deal with it if she's still fighting. Pray to God I don't lose her. Our family has been very supportive as well.

<blockquote><b>Quoting AwkwardAndSilent:</b>" Alright so we are still waiting for surgery. My daughter, Olivia Day, is in the PICU getting stronger ... [snip!] ... me that I can deal with it if she's still fighting. Pray to God I don't lose her. Our family has been very supportive as well."</blockquote>




My prayers tonight will include your daughter to have a speedy recovery and your family a safe trip home to show her off.

Quoting AwkwardAndSilent:" my daughter was born 12/17/12 and for the first few hours she was perfect. The second time I go to feed ... [snip!] ... scared and I just ask that you keep us in your prayers. We will not be home until probably middle of January if we are lucky. "

Thinking of you and your family and sending prayers your way!