posted 13th Dec
(Posted this in the wrong place- Had to repost here)
I was just hoping I could talk to some other parents here who have children who have experienced developmental delays.
I went to my daughters IEP/PPT meeting today, and everything is just SO confusing. Adina is almost 4, and she just started pre-k last week. So far, I've already noticed an improvement in her behavior within the week, simply because she's getting more structure, and getting the interaction and socialization that I can't give her. So I am thrilled to see these little improvements.
But the test results basically say that she is advanced in some areas (Verbally etc) but she's behind in many others....It's all a mixed bag really, In every evaluation, she got mixed results....So basically, she is in Special Ed now, and also physical therapy for her legs (She has very tight rigid legs muscles). It's just hard to hear "your daughter needs special ed", because things are SO different from how they were when i was a kid. When I was in elementary, the "special ed" kids were the ones who were basically kept in their own room, ignored by the other kids, and treated like they were weird or different, Thank GOD it isn't like that today...but when I hear that term, that is what I think of, and it freaked me out a bit...thankfully, they don't treat children any differently if they are in SE- so I am happy for that...Nowadays I suppose it's basically "extra help" in areas where the child needs it- which is great.
I asked if she could have anything else,if they saw any red flags, and they said that was on the medical end and they don't look into that, only the developmental end. So basically, if I want to find out if she has anything contributing to WHY she has a developmental delay- I would have to go through a doctor. Is it possible to ONLY have delays and be perfectly fine and caught up later on down the road?
Anyways, I just wanted to hear some of your experiences....Thanks
posted 13th Dec
My daughter has been in special education preschool since she was 3 (she just turned 4 last month). She had pretty bad communication delays. She spoke in jargon with "real" words in between. It was like she was speaking her own, made up language. It wasn't until a little before she turned 4 that it dawned on me...hey. She's not speaking in jargon anymore! She uses all of her words now and she's a little machine. Her communication is great.
Some kids just need an extra push. Sera is still a work in progress. She doesn't start kindergarten until 2014 and I am confident that she will be fully caught up by then.
posted 13th Dec
My son started speech therapy at 2 and graduated out of it at 5. He's now in OT for some fine motor skills, but with the extra help, he's meeting those goals quickly. Some kids just need an extra push before they're off and running and caught back up with their classmates.quote
posted 13th Dec
My DS 6yrs is developmentally delayed and became that way from lead poisoning at around 1. There could easily be a medical reasoning behind some of what is going on especially the rigid muscles in her legs. Start there and see a specialist about it, find out if there is a disorder or if she just needs some OT/ motor therapy. You may have to have her in therapy outside of school as well because those kind of school programs don't typically offer enough time to each student. My son had speach thearpy in school and a private speach therapist he saw twice a week every week for over two years. Now he talks so much we never get any peace lol.
I personally would have her evaluated outside of the school system and see if they can find a reason which would better help you help her. Also don't let the teachers/ school push you in and out of those meetings. If you want to ask questions or don't understand something you make them answer any questions you have and you make them explain it to you in a way you can understand it because you can't help your DD if you don't know what's going on.
Most developmental delays are eventually outgrown and they grow up to lead normal everyday lives and that is what I work towards every day of my sons life. I don't give up ever, I make sure his teachers know that I am there and that I know what is going on and I will not tolerate anything but the best for my son. He deserves a great education and he will get one.
See some specicialist in your area that deal with the things your DD is dealing with, in my area Children's hospital is the best of the best and my kids only go there. Find the best that your insurance pays for and make them listen and talk to you and explain everything. Make them help you help her. If you need to talk I'm here you are more than welcome to inbox me.
posted 15th Dec
My daughter turned 2yrs old in August, she's developmentally delayed & non-verbal. She's been in physical/occupation therapy since she was 12mos. old & just started speech therapy around 20mos. old, which they are going to be increasing her sessions soon for speech therapy since she's not progressing as well as her therapist had hoped.
She had a pre-screening for Autsim at her pediatrician at 18mos though she will be getting reevaluated for it & anything else on the spectrum when she turns 3yrs old. I've basically been told by the staff at the pediatrician's office that diagnosing her is done by the specialists through her therapy, NOT by the pediatrician.
I've also been told by both my daughter's therapists that they have seen children who are delayed w/o having any disorders. So it IS possible for a child to be delayed for no specific reason at all. Though my daughter was also born w/ a stage 3 kidney reflux that had her hospitalized for days at a time multiple times from 4wks old until she had surgery just before her 2nd birthday. Due to her kidney reflux she was on medication daily from 4wks old until about 2wks after her surgery & her therapists have also said delays could be a response to medical conditions, treatments in & out of hospitals & prolonged medication usage. We will hopefully know more & get a definitive answer when she is reevaluated at 3yrs old.
posted 15th Dec
has your daughter ever had an MRI?quote