Quoting Naocorn:" Does your kid like pressure or to be covered, snuggled, or in water after these episode? Have they considered sensory seizures?"
He has had two episodes and this is what happened both times.....they were EXACTLY the same.
I woke up before him which NEVER happens. After a while of him still laying there, I decided to wake him up. I turn on the light to find him grey (almost cyanotic) in the face, nearly unresponsive and totally floppy. The first time it happened, I took him straight to the ER. He started to kind of come around in the car and did end up drinking a little bit of juice. He continued to improve and looked better color wise once we got to the ER. He vomited about 30 minutes after we got there and then bounced back to nearly normal. I'm pretty sure they thought I was a paranoid mom and they discharged him home without any work up and with a diagnosis of "virus".
The second time it happened, he woke up the very same way. This time, I wasn't even messing around with the ER and urgent care wasn't open so I took him to the fire station and asked them to check his vitals. All of his vitals seemed within normal limits. I asked them to also check his blood sugar. They did and it was 53. I thought that seemed fairly low. He drank some juice but this time it took him about 3 hours to return to a fairly normal state.
I followed up with his pedi who felt 53 was not a low enough blood sugar (at his age) to cause the symptoms he was having. She is more concerned that he may be having seizures and that's why the eeg was ordered.
so, in a nutshell.....yes, he does have some sensory issues but there is also something very wrong (medically) that is causing these episodes. We just have to figure out what it is.
man, that was long....sorry