My story (Graphic pic)

So, I know its been a while but we have been really crazy.

So, I went on on August 7th and had my twin boys by c section at 12:36 and 12:37 pm. 38 weeks, they were perfect 

We were released from the hospital and were sent back 2 weeks later because Hunter was "failing to thrive"
First it was his "flappy airway" so we did surgery on that. Then he was on life support and every time they tried to take him off he couldnt breathe on his own. So they lasered off the swollen tissue and that didnt work. This went on for a month. My child was hooked up to a machine that was breathing for him for a month. Then we decided that a trach was the best course of action. So we put in the trach and he was doing really well.
Well now we had to find out why he wasent gaining weight by eating through his mouth. First, he had acid reflux so badly that it burned his throat numb. Then they did and ultrasound and found out he has pyloric stenosis, which is a grouping of the muscles at the bottom of the stomach, by this time he had developed an oral aversion so we decided to put in a feeding button, and do something called a fundolication, which is where they wrap a piece of the stomach around the esophagus, Well after this they wanted to check his heart. He has a narrow aorta and its from a deformation of the 7th chromosome.

This was him the hospital


Now at almost 4 months old, and a month home from the hospital, here he is now 


Hunter is doing well as you can see, He will have the trach for about a year and the feeding button until he can eat a whole bottle by himself, but hes doing great. Here are some more pics, enjoy ladies and thank you for reading!

Twins..

This one you can see his trach


Jay is almost 6 now, Ive been on babygaga since I was pregnant with him at 15, how time flies!


Matthew and Daddy

I'm sorry but at least he is doing good now. What is a feed button?

Quoting Misty Walls:" I'm sorry but at least he is doing good now. What is a feed button?"

its a little button looking thing that going directly into his tummy that his feeding tube hooks up to. Thank you, you never realize how truly blessed you are until something like that happens.

Aww, I am glad he is doing so much better.  

Ah ok.. he looks like he's doing really good now. Is he able to drink froma bottle & how would feeding solids work? Did his twin brother have any of the same issues?

The first picture made me want to cry. He looks so good now! I pray he gets better. Good job mama. It looks like a lot of work but god knew you could do it!

Quoting Misty Walls:" Ah ok.. he looks like he's doing really good now. Is he able to drink froma bottle & how would feeding solids work? Did his twin brother have any of the same issues?"

He eats as much as he can from the bottle and we put the rest into his tube, he will start eating solids when his brother does but we wont push him yet. He should only need the button for a few months and no, Johnathan has not had one issue. he just really likes to eat lol

I'm glad they're both doing well.. they sure are cute  

My son had a Nissan fundoplication and a Mickey button as well. My heart goes out to you!

Thank you ladies!!

Awww... I'm glad he's doing better!! He's had a rough start! ;)