18q deletion syndrome
posted 29th Nov
Today I was told my son has this, 18q21.32q23 I am what you would probably call in the denial stage. As soon as the genetics counselor said those words I shut out, broke down and had to leave. My beautiful, perfect baby boy has a syndrome I know nothing about. I truely feel like this is wrong, it can't be, he meets his milestones, so what he has hearing aids and low muscle tone. I don't even know where to begin to gather my thoughts. Does anybody know anyone with this?
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