Quoting mommommommyma:" Went into full blown labor at 1 am, water broke, fully dialated, had him faster than I could blink by ... [snip!] ... transported him to the big nicu that's 45 minutes away. I'm just so overwhelmed right now any advice on a 33 weeker??"
Take a deep breath and try to calm down momma! My son was born at 26 weeks 5 days (9/28/12) and is still in the NICU. It's unlikely that your DS will have an extended stay, but they do sometimes have to stay until their due date, it all depends on how long it takes to get his apnea under control and diagnose what's causing his seizures.
Once he comes home, there won't be much difference then with a normal FT baby except that depending on his length of stay, he may need lots of noise around him to sleep.
Be sure to ask every question that you can think of, and become familiar with everything that is happening with your son. Once I got comfortable with everything, and started changing diapers and starting his feedings, I became a lot less stressed about the situation because I could help take care of him.
Familiarize yourself with NICU terminology and try to be there every day for rounds if you can. I live 1.5 hours from my son's NICU, so this isn't possible for me. Google everything that you don't understand. When you know everything the nurse and doctor's are saying without having to ask a million questions, everything becomes much less scary.
Good luck with your DS and if there's any specific things you would like answered, please just let me know!!!