Important to go on FB. Come Help Me

with making it better. I'm emotional already and this needs to be posted. I'm not going to have them same conversation 20 times to get this point across. And not everyone has e-mail.


To My Family- Yes, this is social media. Yes, I am using it to address everyone, all at once. This is not for my 4 nieces, at all. If I could I would block you from seeing this. Anyway- to the adults in the family... My son understands everything you say to him and in front of him, whether he can see you are not, he is an intelligent boy. And there are to be NO more comments about how well his words or sounds are coming along. Not to him, not to me, not to Mikey. Talk about it with me after the kids are in bed on the telephone, in an e-mail, in person in private. A few weeks ago it was made apparent to me how embarrassed he is with me talking about the Apraxia in front of people and when questions are asked. As his mother I have been talking to him about it and we communicate quite well in our house hold. And the talk about his talking is done. Talk with him and play with him and if you need help figuring out a sign, gesture or something else- that's fine. That's what I am here for. When he talks he talks and celebrate with him in his proud moments. But no more telling him you are talking so good. Or his sounds are improving. It's unnecessary. How would you like it if people would constantly say Oh hey that huge zit is getting smaller. Sure are doing a good job not picking at it.   I don't think that would make you all the comfortable. Thanks a bunch ♥

What exactly is Apraxia?

you can block your nieces from seeing it if you want (right next to the post button you can customize who sees a post) if you're posting this to your wall/ newsfeed...

I think that post will pretty much sum it up. Probably add if they have any questions regarding this to please private message you.

I think that sounds well enough. Are you on your phone? I only ask because you should be able to hide your nieces from the post otherwise.

Quoting Misty Walls:" What exactly is Apraxia?"

It's a neurological motor planning problem. For my son it affects his ability to form sounds and intelligible speech. He also has a fine and gross motor delay. There is lots of info on google.

To give you a quick reference- try saying FAST BOAT 10 times fast, by a few tries in, things get scrambled and it's not clear what you are trying to say. It's similar but all the time. And he is very severe.

Also, a stroke victim who loses the ability to write, talk etc. is called acquired apraxia. Where my son is developmental in nature.

Quoting 624582:" I think that sounds well enough. Are you on your phone? I only ask because you should be able to hide your nieces from the post otherwise. "

I am looking into that now...

Quoting ♫ boobook ♫:" I am looking into that now..."

I just checked to see if you could edit the status after posting, but you can not. If you click where it says friends (or whatever your audience is) you can click custom and block them. You could always copy & paste with the customized settings, if you'd like.

Quoting 624582:" I just checked to see if you could edit the status after posting, but you can not. If you click where ... [snip!] ... is) you can click custom and block them. You could always copy & paste with the customized settings, if you'd like. "

I fixed it before I posted.   Thanks. Now, to wait and see who gets all butt hurt LMFAO

I honestly DGAF anymore. I've been thinking about this for awhile and no one can take kind wording. lol So Bam I think that was straight forward and to the point.

Quoting ♫ boobook ♫:" I fixed it before I posted.   Thanks. Now, to wait and see who gets all butt hurt LMFAO I honestly ... [snip!] ... about this for awhile and no one can take kind wording. lol So Bam I think that was straight forward and to the point. "

Well if you have brought this to their attention several times in the past then they can just suck it up and get over it. Plus, I didn't find your post to be rude. You were to the point and speaking out in your son's best interest.

Quoting 624582:" Well if you have brought this to their attention several times in the past then they can just suck it ... [snip!] ... and get over it. Plus, I didn't find your post to be rude. You were to the point and speaking out in your son's best interest. "

I read it to DH when he got home and he made me add on a comment. Ahh I hope this was blunt enough. And I don't have to be rude any time soon. I'm done being nice, regarding this.

Oh and no making him try to say words. Period. That is fine for his cousins as they like doing that back and forth kidding and what not. That is to be left to his SLP, his dad and myself. Just enjoy the time you spend with him

<blockquote><b>Quoting ♫ boobook ♫:</b>" It's a neurological motor planning problem. For my son it affects his ability to form sounds and intelligible ... [snip!] ... a stroke victim who loses the ability to write, talk etc. is called acquired apraxia. Where my son is developmental in nature. "</blockquote>



I'm sorry your family is insensitive to his condition. I think your post was clear and to the point, without bein rude. Can your son not see as well?  

<blockquote><b>Quoting Serial Mom ✄:</b>" <blockquote><b>Quoting ♫ boobook ♫:</b>" It's a neurological motor planning ... [snip!] ... insensitive to his condition. I think your post was clear and to the point, without bein rude. Can your son not see as well?  "</blockquote>


Huh? Why would you think he can't see? I'm confused.

His eye sight is fine. No glasses or anything  

Quoting ♫ boobook ♫:" I read it to DH when he got home and he made me add on a comment. Ahh I hope this was blunt enough. ... [snip!] ... back and forth kidding and what not. That is to be left to his SLP, his dad and myself. Just enjoy the time you spend with him"

I can kind of understand your frustration. My almost 3 year old son does not have Apraxia, but his speech isn't incredibly clear and he still has a hard time with some words. He didn't really begin talking until he was 2, ever since then his speech is the main focus when we visit family, even when a stranger interacts with him. Everyone knows a 2 year old who can single Twinkle, Twinkle Little Star backwards, perfectly clear . Like I said my son doesn't have Apraxia, but I have heard what Apraxia speech sounds like. They should focus more on the time they are able to spend with him other than his struggles, and frustrating him with repeating words.

<blockquote><b>Quoting 624582:</b>" I can kind of understand your frustration. My almost 3 year old son does not have Apraxia, but his speech ... [snip!] ... focus more on the time they are able to spend with him other than his struggles, and frustrating him with repeating words. "</blockquote>


It's irritating for sure. I'm sorry your family does that too.   why does everyone feel the need to correct? I don't get it.


We have strangers who try to talk to him.. But he literally only has about 10 words. Mama, dada, 'I' is hi. Bu is bye, o-fffffffffff is off. E-I-Ah is Elijah his brother, ahhh is water, 'o' is go, Bo for boat and that's it. Other than that it's squeels and shrieks and in response most strangers just stare or give evil looks. He didn't even say his first word, dada until 27 months. And because of that people think he has mental problems. However, he is very advanced in his cognitive ability. And people don't get it. :/ I'm over it.

So, I got two people apologizing, even though they weren't the ones I was talking to. And the others have called, but haven't said anything about it. Then my grandma called and said it wasn't right I target S about it on Facebook- she must have called gram knowing. This s is in her 50's and I didn't even directly give any names so lol at that. And then a bunch of people commenting that I'm amazing or I'm an amazing mom  so that was nice. And then for some reason my good friend was offended and said, I was being mean and people giving him affirmations is a good thing. Uhm no, did you not read what I said?  

Sorry for that rant..