Quoting TrollMama:" I'm not sure if they would have detected it or not. Or checked even. It's not the kind of thing you terminate ... [snip!] ... of). But every baby looks different so I didn't immediately think "condition" so much as "where did she get her nose from?"."
I found out at my 20 week ultrasound and they told us right after. I had 5 ultrasounds after that. There's nothing we could do until she was 6 months old. But I breastfeed her up until she was 17 months, never even used a bottle or binky.