Gene Deletion!!! Very rare/ IUGR

I had a baby boy on april 23rd of 2012 I was 38 weeks. He weighted in at 3lbs 12oz. They ran some test and really couldn't find out what was wrong with him. His Billiruben was high and his liver enzymes were hi also. They finally ran a chromosome test and found out he is missing 4 genes in his X chromosome. There was a study done on three other boys 10 years ago and they never had another one with until my son was born. It was hard to hear that they don't know what is in store for my little guy. The other boys were 4 months and 11 months when they past away. I was just wondering if there is a parent out there with a son that had IUGR? if so I would love to talk to with. My son had other things also going on but the docs did say he was IUGR.

congrats?

Allllllrighty then.

...,..........Im lost.

Awesome sauce

Think this was an oops? I hope so

I wasn't done writing and somehow I posted it sorry

Aw, I'm so sorry to hear that. I'm no help, but wanted to send my love!

sorry you're going through this

<blockquote><b>Quoting Ravey Candyass:</b>" congrats? "</blockquote>

I saw this comment first after reading it and I thought "how mean!" but realized she didn't type the whole thing.  

Op im sorry, it must be really hard S.ending good thoughts your way

thanks, it's been a rough road, he is our first and he is a wonderful baby so far,
If I knew how to post pics I would but I don't

<blockquote><b>Quoting Holly Malik:</b>" I had a baby boy on april 23rd of 2012 I was 38 weeks. He weighted in at 3lbs 12oz. They ran some test ... [snip!] ... son that had IUGR? if so I would love to talk to with. My son had other things also going on but the docs did say he was IUGR."</blockquote>




I'm sorry to hear this  
I hope your son is able to defy the odds against him and go on to live a healthy life.

<blockquote><b>Quoting Holly Malik:</b>" I had a baby boy on april 23rd of 2012 I was 38 weeks. He weighted in at 3lbs 12oz. They ran some test ... [snip!] ... son that had IUGR? if so I would love to talk to with. My son had other things also going on but the docs did say he was IUGR."</blockquote>



IUGR simply means he hasn't grown normally inutero. The other problems are not called IUGR (intrauterine growth retardation). The missin genes could have caused the IUGR. Most babies born small end up being healthy adults later on. But your lo has other complications that affects the outcome.. I hope he survives this. So sorry