I'm driving myself crazy

I hate not knowing how Isla's brain damage is going to affect her.
smurf. I constantly look things up and then cry.
I just want to know what we're dealing with.  
I'm having a hard time accepting it, because I don't fully know what I'm accepting. I don't know how hopeful is too hopeful. thats a smurfing bad feeling. I get angry when someone tells me she's going to be "just fine"
 
she's 6 weeks and is a seemingly normal sweet little baby
bleh

I think I'm having a bad day.

That sounds so hard  

I'm sorry hun.

Quoting .Colleen.:" That sounds so hard   I'm sorry hun."

thanks. I usually hold up better than this.
but it's getting the best of me today

Quoting Dallas ♥ Isla:" thanks. I usually hold up better than this. but it's getting the best of me today"

The unknown is hard, especially for moms
we automatically expect the worst. 

Has she had anymore seizures since the first time?

No matter what happens, she will still be your sweet baby girl

Quoting .Colleen.:" The unknown is hard, especially for moms we automatically expect the worst.  Has she had anymore seizures since the first time? No matter what happens, she will still be your sweet baby girl"

she hasn't had anymore since her first few days, she's on meds to prevent them. an EEG showed that she still has "seizure activity" in her brain so she's staying on the meds for a few more months until it hopefully stops

Quoting Dallas ♥ Isla:" she hasn't had anymore since her first few days, she's on meds to prevent them. an EEG showed that she ... [snip!] ... that she still has "seizure activity" in her brain so she's staying on the meds for a few more months until it hopefully stops"

Best if luck to you all

Do they have any idea when it may become apparent that she has issues from it? Or do you just have to wait developmentally?

Quoting .Colleen.:" Best if luck to you all Do they have any idea when it may become apparent that she has issues from it? Or do you just have to wait developmentally?"

thanks love

the neurologists just told me we'll have to wait and see how severe it will be, we'll start noticing it when the time comes for her to meet milestones like sitting, crawling, grasping etc

<blockquote><b>Quoting Dallas ♥ Isla:</b>" I hate not knowing how Isla's brain damage is going to affect her. smurf. I constantly look things up ... [snip!] ... she's going to be "just fine"   she's 6 weeks and is a seemingly normal sweet little baby bleh I think I'm having a bad day."</blockquote>


I just saw this and wanted to comment.

My son had a stroke during a catheter surgery at 2 weeks old. That stroke threw a clot to his brain and he has 20% lower left brain damage. It also caused him to have seizures.

Babies are very resilient. The rest of their brain compensates for non workin or damaged sections. (The way his neurologist told us).

He is now 2 1/2 years old and a bit delayed. But he has come along way and if I didn't tell someone about his brain damage.. They wouldn't know.

I'm wishing you all the best. It can be very hard to deal with and not knowing what'll happen when they are older. But you just have to stay strong.

Quoting Mummy-2-2-Monsters:" <blockquote><b>Quoting Dallas ♥ Isla:</b>" I hate not knowing how Isla's brain ... [snip!] ... best. It can be very hard to deal with and not knowing what'll happen when they are older. But you just have to stay strong."

awe thank you so much for sharing that. her damage is pretty extensive on both sides. I've had some doctors tell me what you said about babies brains being resilient and "plastic", and others say her outlook isnt as good because both sides are affected. so I just don't know what is going to happen.
so happy that your LO is doing so well though!