re: Fibromyalgia and Chronic Pain Support Thread

Quoting Chroma Hex [+1]:" Anything can trigger your FMS to suddenly spike...and most of the time, you don't go back to the way ... [snip!] ... even if you have to cut back! Doing shorter exercises but more throughout the day has proven to cause extra weight loss anyway."

Yeah. We're getting a new double stroller because I want to take the kids out to the park and stuff during the day, but I can't carry them anymore. I'm hoping to be able to walk a bit more with them in the stroller instead.

I'm adjusting, I think it's just really hard for me to accept limitations. I've sort of been the type that saw them as walls to go over, you know? So now I have to stop and sit and go "enough. I need to slow down."

So I got my blood work back today. My Ana was boardlne negative/positive and my blood cells are showing sickle traits so I'm seeing a hemotoigist and oncologist next week. I need lots of good thoughts ladies!

<blockquote><b>Quoting she nan igans:</b>" Question. How do you gals manage weight loss/exercise? I want to work out SO BAD, but I'm so afraid ... [snip!] ... was extra sore, this last time it laid me flat on my back for like days. It was HORRIBLE. Now I'm afraid to push myself at all."</blockquote>




I walk when I feel normal. Otherwise I stick to hot yoga. It feels amazing and is the only thing that works my body without me feeling like I'm killing myself.

Quoting ILOVEWINE:" So I got my blood work back today. My Ana was boardlne negative/positive and my blood cells are showing ... [snip!] ... cells are showing sickle traits so I'm seeing a hemotoigist and oncologist next week. I need lots of good thoughts ladies!"

Goodness, I'll be thinking of you hun!! *hugs*

Quoting ILOVEWINE:" So I got my blood work back today. My Ana was boardlne negative/positive and my blood cells are showing ... [snip!] ... cells are showing sickle traits so I'm seeing a hemotoigist and oncologist next week. I need lots of good thoughts ladies!"

Any word yet love?

Quoting she nan igans:" Any word yet love?"

 

I'm getting so upset. I need to make another appointment with my Dr, the muscle relaxers are not working. At least one day a week (but more lately) I am in a LOT of pain during the day too, to the point I can't lift the kids. I just don't know what to do. I am thinking of trying Cymbalta or something like that. I really really don't want to go on a pain killer. they scare the heck out of me, and I react REALLY strongly to most stuff like that. As in, vicodin knocks me out and makes me loopy as smurf first. I'm afraid to take anything stronger then ibuprofen but that isn't working. I've been in tears the last few days.

My arm hurts from neck/collarbone area all the way down to my hands. It's horrible. I even have been getting pain in my chestwall/ribs area and I can't keep this up. =(

Anyone try Cymbalta or any other antidepressants to help? I'm not depressed, and it worries me to go on something like that, but I've heard good things.

Quoting she nan igans:" I'm getting so upset. I need to make another appointment with my Dr, the muscle relaxers are not working. ... [snip!] ... other antidepressants to help? I'm not depressed, and it worries me to go on something like that, but I've heard good things."

I'm not going to share my experiences on medication for FMS because they've all been horrible, BUT I have a chemical imbalance. I've heard good things about Cymbalta. If that doesn't work, they could try Lyrica or Gabapentin/Neurontin. I've heard good things about all of those, but like with all medicines, they don't work for everyone.

I don't know what made your FMS flare up...but I just have days like that..I've accepted that there's nothing I can really do about it.

Do you take nerve pills? My xanax helps me more than anything has. None of the doctors in my area will even prescribe pain killers, because this is a life long thing, you know? I can't take them either. I'm really sensitive to some of them.

I'm so sorry you're having a hard time.

My knees and ankles have literally giving out on me with the changes in weather that have been going on. I'm scared to death I'm going to drop Addie. I can't get out of bed before noon because I'm in too much pain.

<blockquote><b>Quoting she nan igans:</b>" Any word yet love?"</blockquote>




I went into the oncologist Monday and he ran several tests. And I'll be having a colonoscopy next week just as a precaution because it runs in my family. He said my body doesn't feel like cancer, but I have to many red blood cells. He said my fibro could be a cause of this. I'm hoping to hear back from anyday. I just feel really stressed  thanks for your support!

<blockquote><b>Quoting she nan igans:</b>" I'm getting so upset. I need to make another appointment with my Dr, the muscle relaxers are not working. ... [snip!] ... other antidepressants to help? I'm not depressed, and it worries me to go on something like that, but I've heard good things."</blockquote>




I'm sorry  I have not tried either of those, but am going to start Xanax next week.

Quoting ILOVEWINE:" <blockquote><b>Quoting she nan igans:</b>" Any word yet love?"</blockquote> ... [snip!] ... my fibro could be a cause of this. I'm hoping to hear back from anyday. I just feel really stressed  thanks for your support!"

I'll keep my fingers crossed, hon. =[ Lots of good vibes to you!

I'm super anemic and they can't get my iron count up. They think it's my FMS, too. Weird. I didn't think it had anything to do with the blood...

When will you get word on these results?

Quoting Chroma Hex [+1]:" I'm not going to share my experiences on medication for FMS because they've all been horrible, BUT I ... [snip!] ... been going on. I'm scared to death I'm going to drop Addie. I can't get out of bed before noon because I'm in too much pain. "

I take nothing except the flexeril at night and ibuprofen during the day. I know my Dr will offer some painkillers on a short term basis. For the reasons you mentioned I'd like to avoid that, which is why I'm trying to find something that would work well.

I've accepted I will have bad days, but I still want to try and manage it best I can, you know? That's why I'm trying to decide if I really want to try something that I take all the time when I can manage without it most days. I've just noticed that I am having more bad days then I used to.

Hello! I am so glad I seen this suffer from severe chronic pain because of fibromyalgia & lupus. I was just recently diagnosed last year and am still learning what this all means for me. So far nothing had worked for me though. My symptoms started when I was working at walmart (well I had random bad things that happened to be before then-especially when I was pregnant-, but didn't know to connect it all until recently). I had horrible pain in my neck, back, arms, hips, basically everywhere. My hip has actually had to be popped back into place twice already because it had popped out of place and I was dragging my leg around literally. I seem to have a lot of problems with my joints popping out of place. It took me about 2 years to get diagnosed and has been a really frustrating process. I was horrible sick & in pain for the longest time & started to feel better at the begining of the year. Although, now I am in severe pain again, starting to get headaches every day, always feeling nausous, & pretty sure I have another kidney stone that lupus likes to make sure I get a lot of.   Pretty sure I am coming out of remission. What sucks the most is my arms, back, & neck are starting to hurt extremely bad again and now my husband is deployed. So it is just my 3 & 4 (5 in Dec.) year old boys. I know before I was in remission, there were times when I literally could not use my arms because the pain was unbareable. I was paralyzed in pain. Sometimes I can't feel my arms or legs either. They will get numb or sometimes evern have shocking like pains that are unbareable. I only get to see my rheumatologist once every 3 months (since my lupus isn't effecting my organs, so technically is not life threatening right now. Although I have had tests in the past say my liver was failing, but they come back normal after retest.) I was supposed to have an appointment last Thrusday actually, but my referral expired so now I am stuck waiting on another one and can't even see my regular doctor until October 15th. I really needed this appointment because my pain just recently started back again.   It is completely miserable to feel sick and be in so much pain all the time. I am not glad that other people know what I am going through, but at the same time, it is nice to be able to have someone to relate to and possible share helpful tips with. Sorry I am rambling. Also sorry for any misplellings or mess ups. I am actually feeling pretty bad right now, so proof reading is hard when you feel dizzy. I am going to go lay down while I have a chance, but thought I would drop in share my story a little and say hi! Hope everyone is doing good today!

<blockquote><b>Quoting *WishingUponAStar*:</b>" Hello! I am so glad I seen this suffer from severe chronic pain because of fibromyalgia & lupus. ... [snip!] ... down while I have a chance, but thought I would drop in share my story a little and say hi! Hope everyone is doing good today!"</blockquote>



Wow! I'm sorry that sounds terrible. What did they put you on for fibro?

Quoting *WishingUponAStar*:" Hello! I am so glad I seen this suffer from severe chronic pain because of fibromyalgia & lupus. ... [snip!] ... down while I have a chance, but thought I would drop in share my story a little and say hi! Hope everyone is doing good today!"

I know what you're saying, honey. No one would ever wish this kind of life on their worst enemy, but at the same time, it's almost a relief to know that you're not the only one.

I can't even compare to lupus. I don't have it, I only know one person with it and we aren't very close...but I know that a LOT more inflammation comes with it than with FMS. It's no wonder you're having such joint problems. =[

The girl I know, she had almost complete failure of the liver, but once that figured out it was lupus, it almost completely repaired itself. It's happened twice now, but from what I've heard, her body hasn't sustained permanent damage from it.

Thank you so much for sharing. If you ever need anyone to talk to, feel free to message me, okay? I'm so sorry to hear that you're going through all of that. =[