Well my son just turnd 4 . I cant beieve 4 years ago I found out he would need open heart sugry and had Di geroge syndrom . It was a long hall we were in the NICU for 4 months . He has had 8 sugrys and a brain injury. He just got his feeding tube removed happyest day of my life. The only thing now we are working on now is talking . He is like any normal 4 year old . Its amazing what they can go thru and come out fine.