Hi everyone i'm Rowan, from Boston and my son has down syndrome. Before he was born ultrasounds showded what they classified as DS markers, so I guess i cant say I was surprised but I think everyone can agree when I say you pray it was a mistake so mentally I think I kept telling myself it happens its not 100% ...when Tobias was born it was the happiest day of my life, and I was so ready to just take my baby home and start being a mom.
I instantly knew something wasnt right, and i broke down I look back now and wonder if the nurses and everyone thought I wasnt happy or was "rejecting him" I was overwhelmed all those months of convincing myself everything was going to be fine and now reality hit and I was scared....
I can now say everyhting has worked out. I cant imagine not having this special boy in my life, he is so smart, funny, loving such an amazing child. I cant believe all the hardships he has overcome and accomplished so much more then I could every imagine.
I also have a little boy with a syndrome. Cornelia de Lange Syndrome (CdLS). We were told at ultrasound that there was something wrong. They told us he didn't have his full arms and he had a syndrome but they weren't sure of what exactly it was. He was born a few days later (at 31 weeks). He was at the NICU for 3 LONG months. I was very scared and overwhelmed. He has been in and out of the hospital his whole life. He is 9 months old. He is on oxygen and a heart monitor. He also is fed through a mic-key button.
I agree with you 100% about not being able to imagine your life without him. God bless and I hope everything keeps going so wonderfully for you all.