its breaking my heart...

so this little boy sent me a message on FB;. he has seizures just like emmalynn.. he has a gene deltion on his chromosome 7 just like emmalynn.. he is 11 years old. He told me he gets picked on and it bothers him alot, since he dribbles and drools when he has seizure. and he only has a few a friends.

he is 11 and can read and write so im hopefull emmalynn will be the same, but gosh it breaks my heart hearing what he says. i dont want emmalynn going through that.. but his mom seems really sweet. im going to talk to her later on. its just so werid..

he has the SAME thing... his seizures started as a baby and switched from temperal lobe seizures to generalized seizures.. what are the chances??

of course they are in the UK.. im just happy to know someone else has the same thing.
.. not happy of course, i dont want any child to suffer through this, buts a nice feeling not feeling so alone during this, since doctors are confused to as why emmalynn is the way she is..

awh that's so sad.. ):

sad   i feel so bad for your DD...what a strong and brave little girl!!

and her momma is SO damn strong!!

but it must be nice to connect with someone else experiencing the same thing?!

Quoting *hiyalindz* [EBFB]*:" sad   i feel so bad for your DD...what a strong and brave little girl!! and her momma is SO damn strong!! but it must be nice to connect with someone else experiencing the same thing?!"

he is cute. he siad, when your duaghter gets older, do you think she would want to talk to someone going through the same thing as her??

i said yes.... : )

he always asks what she is doing and stuff.. he told me he plays tennis and trampolining. lol : )

Quoting Venus Penis Trap.™:" awh that's so sad.. ):"

i am hopefull that emmalynn will be able to function like this boy.. he can read and write obviously and plays sports, even though he said seizures do interfere sometimes and that the seizrues just feel strange and he cant remmeber anything.

  oh that is so sad kids are so mean he sounds like a sweet boy I've never heard of what he and your DD have I'm glad you found someone to relate to tho!

Quoting EskimoKiss:"   oh that is so sad kids are so mean he sounds like a sweet boy I've never heard of what he and your DD have I'm glad you found someone to relate to tho!"

yeah my nuero didnt even know what to think. its crazy! she had never seen anything like emmalynns case..

 

Have you ever tried essential oils on her? I have heard that it has amazing results on seizures.

Quoting Party of FIVE!:"   Have you ever tried essential oils on her? I have heard that it has amazing results on seizures."

actually i have been looking into it..
my friend is very natural and uses things like lavander oil and stuff to help with fevers..
i should do some more reasearch!

Quoting ☮ Phuket:" actually i have been looking into it.. my friend is very natural and uses things like lavander oil and stuff to help with fevers.. i should do some more reasearch!"

You should! My sister uses it on her, she uses the brand doterra and the Frankincense works wonders on her! I have heard other people say it as well. You should try it!!

Quoting Party of FIVE!:" You should! My sister uses it on her, she uses the brand doterra and the Frankincense works wonders on her! I have heard other people say it as well. You should try it!!"

did they take it WITH medicine?? ill have to call her nuero and make an appt soon anyway, so i will ask her what she thinks then

Quoting ☮ Phuket:" did they take it WITH medicine?? ill have to call her nuero and make an appt soon anyway, so i will ask her what she thinks then "

My sister didn't, I don't know about the others..

Quoting Party of FIVE!:" My sister didn't, I don't know about the others.."

oh okay!

Quoting ☮ Phuket:" he is cute. he siad, when your duaghter gets older, do you think she would want to talk to someone ... [snip!] ... i said yes.... : ) he always asks what she is doing and stuff.. he told me he plays tennis and trampolining. lol : )"

awww how freaking sweet is that!!!
he sounds like a nice kid!...it seems like it is really hard to find nice genuine kids nowadays...most are aholes...not even kidding

Quoting *hiyalindz* [EBFB]*:" awww how freaking sweet is that!!! he sounds like a nice kid!...it seems like it is really hard to find nice genuine kids nowadays...most are aholes...not even kidding"

i think i spoke to soon.. i talked to his "mother" via FB and i could tell it wanst really his mother.. ya know.. the mom kept saying they had the same exact issue and were on the same exact medicines, never told me the doctors name or specefic medicines when i asked..

and her name is Gill... shouldnt it be Jill.... like he misspelled Jill pretendeing to be his mom.. i dont beleive him anymore. why lie about seizures..?

oh yeah and the "mom" was like/ " hold on matthew is having a tonic clonic" its all cool..

no mother would say that.