Trisomy 18

Does anyone have/had a trisomy 18 baby. I would love to talk to them. Thank you

<blockquote><b>Quoting mamaluvsher4babies:</b>" Does anyone have/had a trisomy 18 baby. I would love to talk to them. Thank you"</blockquote>




This has been a scare for us. We were told out son could possibly have it at 25 weeks we were informed because his hands were clenched in his U/S

I am 18 weeks and it was confirmed by amniocintisis(SP?)..Clenched fist is a marker. My markers were fluid surronding the baby and heart defect. I will be going for another ultra sound next week. I am sure they will find more  

<blockquote><b>Quoting mamaluvsher4babies:</b>" I am 18 weeks and it was confirmed by amniocintisis(SP?)..Clenched fist is a marker. My markers were ... [snip!] ... fluid surronding the baby and heart defect. I will be going for another ultra sound next week. I am sure they will find more  "</blockquote>




I'm so sorry   we chose not to have the amnio. We have been stressed out & worried about it, but all his issues have been taken away that were possibilities for it other then he has ventricularmagly (water on the brain). They will still won't confirm however with us that he doesn't have it, until we get the amnio. My heart goes out to you. We researched so much on T 18. It's devastating   prayers are going your way!

Thank you! I got the amino so I knew what I was dealing with. I never thought in a million years it would come back TR18. I was thinking Down Syndrome. I wish! I wish you all luck.

You too sweetie! :/

<blockquote><b>Quoting mamaluvsher4babies:</b>" Does anyone have/had a trisomy 18 baby. I would love to talk to them. Thank you"</blockquote>




My husbands and my first baby had it. Diagnosed at 4 month ultrasound because of the thick skin at back of neck and fluid there as well all organs grew in the chest and lungs were not able to develop the baby would have died immediately after delivery or in uterero we chose to end the pregnancy the hardest decision we ever had to make. They did blood tests and and amino also to confirm genetic dr s said it was just a fluke if you have anymore questions let me know I know what you are going through and how difficult this is I'm so sorry

I'm SO SORRY!! I know exactly how you feel my 20 week ultrasound raised concerns with my doctor, as she suspected undevelopment with stomach area and heart defect. My baby also had clenched fist on the ultrasound. So I was scheduled to she a specialist. I went to see my specialist a little after my 22 week marker. It was a hard day for me. He did detailed ultrasound which revealed everything and put it with a name. That's when he came to trisomy 13 and gave my the option of an animo test. Super hard decision for me. I sat there with the clip board in my hand for literally about 30 minutes or more. I eventually got the nerves to pull myself together and do it. After 10 days I was called and trisomy 13 was confirmed. At the time I was bout 24 weeks. I didn't know what to do. Now I'm 28 weeks pregnant. I'm not experienced with the syndrome but I can offer an ear to listen so feel free to pm me anytime. GOOD LUCK MOMMY!! HUGS

this video is very sad, yet very heart warming and inspirational. you mamas are so strong!!!

Although my child didn't have any Trisomies, a good friend's son had Trisomy 13. You can PM me if you'd like to know more. Good luck mama!

Quoting Unbr3@k@bl3:" I'm SO SORRY!! I know exactly how you feel my 20 week ultrasound raised concerns with my doctor, as she ... [snip!] ... I'm not experienced with the syndrome but I can offer an ear to listen so feel free to pm me anytime. GOOD LUCK MOMMY!! HUGS"

I am very sorry to hear about your little one. I did some research on Trisomy 13. Everything is so very scary. It took me a couple days to come back into reality. Kept on looking at the ultra sound pics. Thinking she just had her hands ina fist or she just wanted to cross her legs. I never had to plan a funeral before. never thought in a million years it would be my own child. I have decided to carry to term. Her name is Isabella. I know it's kind of cliche to say "stay Strong" but it's the only thing we can do right now.

<blockquote><b>Quoting mamaluvsher4babies:</b>" I am very sorry to hear about your little one. I did some research on Trisomy 13. Everything is so ... [snip!] ... to term. Her name is Isabella. I know it's kind of cliche to say "stay Strong" but it's the only thing we can do right now."</blockquote>

Yulp it is most definitely hard, especially considering it my first time to make it this far( one etopical (sp) one miscarriage like 4 weeks). However I decided to continue with my pregnancy, she means to much to me to just give up. If she going to fight the least I could do is give her a chance and be her cheerleader. Her name is going to be Journeigh Grace. It's most definitely hard. As of the funeral I still haven't accepted that yet. I just can't. I don't even know how to plan a funeral. All I want is time with her.

I have a 3 year old, Rebekah, with full trisomy 18. I'd love to offer you some encouragement and hope. Check out http://www.hopefortrisomy.org/ . We have a great facebook group for families facing rare trisomy conditions, like trisomy 18. https://www.facebook.com/groups/T18Mommies/

You can check out Rebekah at https://www.facebook.com/rebekah.budd

Thank You soooooooooooo much!!!

Quoting Susan Budd:" I have a 3 year old, Rebekah, with full trisomy 18. I'd love to offer you some encouragement and hope. ... [snip!] ... trisomy 18. https://www.facebook.com/groups/T18Mommies/ You can check out Rebekah at https://www.facebook.com/rebekah.budd"

she is beautiful!!! My little girls name will be Isabella Leona