Trisomy 18

Hello All!! I haven't been on in awhile. I am pregnant again and found out recently that my little Isabella has Trisomy 18. I basically have to plan my daughters funeral. I have my good moments and bad momets. I refuse to terminate, I would be killing my little girl and that is not up to me. We are leaving it in Gods hands. We pray that we get at least 5 mins with her. I have done so much research on TR 18 and know what to expect. It's hard knowing your child is going to die and you can't do anything about it and you do not know when it is going to happen.

Aww I'm so sorry hun, I hope you do get to spend atleast a few minutes with her.

Sorry mama   enjoy every moment u get. God bless.

Have you ever watched the video on youtube 99 balloons? The baby had Trisomy 18 and he lived 99 days   It's a really cute sad video. I hope you get time with you baby.

I am so sorry. I know there are some other mommas on here that have gone through the same diagnosis. Hopefully they will find this thread and offer some support.

http://members.baby-gaga.com/member875275

The member I am linking you to has gone through a different diagnosis but with the same end result. She is always willing to talk to other mommas and she is very nice.

Thank you all!! Yes I know about the 99 ballons  

Awe I'm sorry to hear about this! I hope you get to spend Time with your princess!!

I'm sorry your going thru this momma. I am currently 36 wks with a baby girl who has bilateral renal agenesis along with some other health issues. I know its hard and I'm not gonna say be strong because how can one expect a mother to be strong saying good bye to her baby but I will say however heart breaking an desperate it seems you keep going on. And for now that's all you can do.

I had to look that up. I am sorry to hear about that. It is hard to stay strong. I have an 10 month old that helps me out   I have to make a birth plan; and it is very hard. Part of me wants to do this but the other part says no. It's so overwhelming.

I also a 4 year old daughter to help me and a wonderful fiancé. I completely understand the overwhelming feelings of despair. I know that sometimes staying strong just isn't an option. Just know its okay to yell and be pissed off and to just lose it. No one can honestly expect you to stay in the positive thinking 24/7. I put off everything and kinda had my home frozen in time from the moment we found out and when I was able to come thru the grief a little i found ways that worked best for me to cope and I hope you can find yours and just know you don't need to plan it all out at this moment but it is good to be prepared for whatever else may come.

I'm with the Trisomy TRIS Project. I just thought it may be helpful to you to look at our facebook. https://www.facebook.com/#!/TrisomyTRISproject We are current studing family support and lifespan of children with Trisomy 18, 13, & 9. While I'm not promissing any miracles, as long as you are able to find a proactive doctor the survival rate for an infant with Trisomy 18 has been increasing each year. Our site also will help get you in touch with other parents who know exactly what you are going through.