Forums > Special Needsby: ohbabyyy

delete me please

posted 29th Aug '12
thankyouandgoodbye
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I have 1 child & live in Maryland
posted 29th Aug '12
i know EXACTLY how you feel!!! my son has autism, hes 3 years old and just a few months ago started repeating a few words..hes never said "mama" or "i love you"...its heartbreaking to see other kids their age doing "normal" things..
it pisses me off so much to hear parents tell their kids to be quiet..im thinking..if you only knew how it would feel if your child wasnt talking at all  
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I have 1 child & 3 angel babies & live in California
posted 29th Aug '12
Quoting supermommy☠:" i know EXACTLY how you feel!!! my son has autism, hes 3 years old and just a few months ago started repeating ... [snip!] ... hear parents tell their kids to be quiet..im thinking..if you only knew how it would feel if your child wasnt talking at all  "
exactly... my son only makes baby noises... and people wonder ytf is he still doing that? and its not fair... i hate seeing kid leashes because if my son was walking i'd let him explore EVERYTHING!
you're so strong mom, i know how you feel
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I have 1 child & live in Maryland
posted 29th Aug '12
im so sorry youre going through this
do they know why hes delaying in motor skills?

good luck with your son
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I'm due January 4th, have 1 child & live in Missouri
posted 29th Aug '12
Quoting My Momma's a Llama:" im so sorry youre going through this do they know why hes delaying in motor skills? good luck with your son"
he has a super rare genetic brain disorder called "leukodystrophy" and muscle dystrophy called "dystonia" ...
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I have 1 child & live in Maryland
posted 29th Aug '12
I dont have a child at all yet let alone one with a disability but I think youre an amazing mother because you admitted that theres a problem. I just heard of a thing called baby sign language, do you think he would be able to do that? I know alot of children with disabitilties can learn to do specialized movements before ever doing anything else. You sound like a very strong women   I would let him get frustrated for a while to see if he tries a little harder maybe.
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I'm due September 6th (a boy) & live in Colorado Springs, Colorado
posted 29th Aug '12
Quoting desi&cody:" he has a super rare genetic brain disorder called "leukodystrophy" and muscle dystrophy called "dystonia" ..."

im sorry
is there treatments that can help?
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I'm due January 4th, have 1 child & live in Missouri
posted 29th Aug '12
Quoting My Momma's a Llama:" im sorry is there treatments that can help?"

leukodystrophy is just the umbrella term...theres no cause determined yet or how it happened... and no theres no treatments. just muscle relaxers for the dystonia
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I have 1 child & live in Maryland
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