Forums > Special Needsby: *

anyone know anything about hydrocephalus?

*1985 posts
parentankignore
posted 15th Aug
cousins baby has it? she is 2 months old. what causes it? and is there any treatments that can cure it for good? is this something she will have to live with forever? just looking for any advice.
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I have 2 kids & live in Amsterdam, Netherlands
Zoe&Harper's Mom (Em)16881 posts
parentankignore
posted 15th Aug
not sure what causes it but I use to keep a girl that had it and she had a shunt put in that would strain the fluid off her brain and she did have to have the shunt replaced at least once as a child but she is a healthy 20 year old now. She will have to have it checked for the rest of her life.
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I have 2 kids & live in Alabama
SailorJerry17154 posts
parentankignore
posted 15th Aug
They thought my son had it. I went in for an ultrasound and they said one of the ventricles on his brain was enlarged. They followed up on it some weeks later and thank god he didnt have it but I did my fair share of research. Basically its fluid on the brain. They can put a stent in there when they are born to drain it but they have to do it constantly because it can reject or fill up again. It basically happens ftheir entire life a lot of the kids who suffer from it have a distorted appearance like their heads are bigger. Its really sad and im thankful my son didnt have it.
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I have 2 kids & live in California
missmommy.x3 J,A&B12712 posts
parentankignore
posted 15th Aug
http://members.baby-gaga.com/member628796

Message this moma! She knows lots about it. Her son has been ( and still is) dealing with it.
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I have 2 kids & 1 angel baby & live in Windsor, Ontario
kikki_liz304 posts
parentankignore
posted 15th Aug
..i dont know much about it but i know its basically water in the brain..which basically means mental disability..i dont know what causes it..but there is no cure..the baby will probably have to go to a neurosurgeon every so often
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I have 1 child & live in Sharon, Wisconsin
myr-a-myr2280 posts
parentankignore
posted 15th Aug
A coworker's daughter has it. She had a shunt put in and she has had 17 surgeries so far to change it. Her case is severe though and is very dependent of her shunt. If it breaks she has around 3 hours to change it before going into a coma. So it's a no no for sports or anything causing pressure to the head like scuba diving etc.

It also caused half of her body to not grow the same as the other. Like she only has half an ear, arm and leg a little shorter then the other side. One foot is a size smaller then the other.

I wouldn't have known unless her mother would have told me though. She is a summer student where I work and is starting university this September! She is a very smart and independent lady.
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I have 3 kids & live in Quebec
I Stab People5182 posts
parentankignore
posted 18th Aug
Quoting kikki_liz:" ..i dont know much about it but i know its basically water in the brain..which basically means mental ... [snip!] ... dont know what causes it..but there is no cure..the baby will probably have to go to a neurosurgeon every so often "

please do not pretend like you know what your talking about. thats totally innacurrate
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I have 3 kids & live in Zambia
missmommy.x3 J,A&B12712 posts
parentankignore
posted 19th Aug
Quoting Ailey+Lennon+Renner's Mom:" please do not pretend like you know what your talking about. thats totally innacurrate"
 
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I have 2 kids & 1 angel baby & live in Windsor, Ontario
myr-a-myr2280 posts
parentankignore
posted 19th Aug
Quoting kikki_liz:" ..i dont know much about it but i know its basically water in the brain..which basically means mental ... [snip!] ... dont know what causes it..but there is no cure..the baby will probably have to go to a neurosurgeon every so often "

Well from what I saw with my coworkers daughter, she does have water in the brain...but there is no mental or intellectual disability...at all. At 17, she graduated with honors, yes she worked hard because her constant stays and brain surgeries caused her to miss lots of school and get behind but with the aid of a tutor to catch up while in the hospital graduated with straight As!

Now she will study in French literature and then keep studying to be an elementary school teacher. Along with more classes. She said she has about 7 years of university ahead but is VERY excited and has had 3 universities fight back and forth to have her as a student...she is that smart and that good.........

OP I know her mom is part of an association to give information/support for parents and family members who go through hydrocephalus. I don't know what it's called but if you would like, I could ask her and then send you the link for information for you and your cousin. PM if you are interested  
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I have 3 kids & live in Quebec
Grethel60 posts
parentankignore
posted 28th Aug
some babies get a vp shunt to help drain the fluid , but there is no cure my daughter had a grade 4 bilateral ivh , which evolved into hydro but she is unshunted . im here if you have any specific questions
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I have 1 child & live in Plant City, Florida
kikki_liz304 posts
parentankignore
posted 6th Sep

Quoting Ailey+Lennon+Renner's Mom:" please do not pretend like you know what your talking about. thats totally innacurrate"

i looked it up online..i dont know much about it at all..
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I have 1 child & live in Sharon, Wisconsin
Grethel60 posts
parentankignore
posted 7th Sep
I'm sorry but a lot of these answers are extremely inaccurate . just because they have hydro does not mean their head will be deformed .they do go to a nuerosurgeon but it is on basis of how severe the case is . your best bet is to talk to your neurosurgeon and discuss any concerns or questions you have .
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I have 1 child & live in Plant City, Florida
lady face992 posts
parentankignore
posted 8th Sep
Quoting Grethel:" I'm sorry but a lot of these answers are extremely inaccurate . just because they have hydro does not ... [snip!] ... of how severe the case is . your best bet is to talk to your neurosurgeon and discuss any concerns or questions you have ."


!!! Wow!!!
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I have 3 kids & live in Baltimore, Maryland
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